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中国大陆自闭症谱系障碍儿童照顾者的心理健康状况:新冠疫情后时代污名化和社会支持的影响

Mental Health Status of Caregivers of Children with ASD in Mainland China: The Impact of Stigma and Social Support in the Post-COVID-19 Era.

作者信息

Chen Zile, Xu Xiaoxuan, Tian Jinlai

机构信息

School of Educational Science, Beihua University, No.15 Jilin Street, Jilin City, 132013, Jilin Province, China.

Department of Basic Neurosciences, Faculty of Medicine, University of Geneva, Geneva, Switzerland.

出版信息

J Autism Dev Disord. 2025 Jul 31. doi: 10.1007/s10803-025-06991-w.

Abstract

Caregivers of children with Autism Spectrum Disorder (ASD) often face significant psychological distress due to stigma, which impacts their mental health and life satisfaction. However, the specific effects of courtesy stigma, vicarious stigma, and affiliate stigma, along with the role of social support, remain underexplored. This study aims to examine the relationships among different types of stigma, social support, mental health (anxiety and depression), and life satisfaction among caregivers in mainland China. A cross-sectional survey was conducted among 123 caregivers of children with ASD from two cities in mainland China. Participants completed validated scales assessing stigma perception, social support, anxiety, depression, and life satisfaction. Correlation analysis, multiple regression analysis, and Bootstrap mediation analysis were employed to test the hypothesized relationships. All three types of stigma were positively associated with anxiety and depression, and negatively associated with life satisfaction. Social support significantly buffered the adverse effects of stigma and partially mediated the relationship between stigma and caregivers' well-being. Moreover, social support played a protective role in mitigating the psychological distress caused by stigma, though it could not eliminate its adverse effects. These findings highlight the pressing need for more effective social support systems, increased public awareness, and early interventions to reduce stigma-related distress. Enhancing support for caregivers of children with ASD is essential for improving their mental health and overall life satisfaction.

摘要

自闭症谱系障碍(ASD)儿童的照料者常常因污名化而面临巨大的心理困扰,这会影响他们的心理健康和生活满意度。然而,礼貌性污名、替代性污名和附属污名的具体影响,以及社会支持的作用,仍未得到充分研究。本研究旨在探讨中国大陆照料者中不同类型污名、社会支持、心理健康(焦虑和抑郁)与生活满意度之间的关系。对来自中国大陆两个城市的123名ASD儿童照料者进行了横断面调查。参与者完成了评估污名认知、社会支持、焦虑、抑郁和生活满意度的有效量表。采用相关分析、多元回归分析和Bootstrap中介分析来检验假设的关系。所有三种类型的污名都与焦虑和抑郁呈正相关,与生活满意度呈负相关。社会支持显著缓冲了污名的不利影响,并部分中介了污名与照料者幸福感之间的关系。此外,社会支持在减轻污名造成的心理困扰方面发挥了保护作用,尽管它无法消除其不利影响。这些发现凸显了迫切需要更有效的社会支持系统、提高公众意识以及进行早期干预,以减少与污名相关的困扰。加强对ASD儿童照料者的支持对于改善他们的心理健康和整体生活满意度至关重要。

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