Kuhlen M, Balzer S, Richter U, Fritsche-Kansy M, Friedland C, Borkhardt A, Janssen G
Klinik für Kinder-Hämatologie, -Onkologie und -Immunologie, Universitätsklinikum Düsseldorf, Duesseldorf, Germany.
Klin Padiatr. 2009 May-Jun;221(3):186-92. doi: 10.1055/s-0029-1220703. Epub 2009 May 12.
In Germany annually 1,500-3,000 children die from life-limiting diseases. Symptoms and course of disease differ considerably depending on the character of the underlying disease. Due to the desire of the children and their families to spend the end of life at home a paediatric palliative home care service was founded at the university children's hospital of Duesseldorf. In the last 20 years a specialised paediatric palliative team evolved from an unstructured voluntary activity. Prospective aims are an area-wide professional supply of all paediatric palliative patients and the improvement of the cooperation with the resident paediatrician and paediatric palliative nursing services. Furthermore the establishment of networks as well as a proper communication among the professionals is inalienable.
在德国,每年有1500至3000名儿童死于绝症。症状和病程因潜在疾病的性质而有很大差异。由于儿童及其家庭希望在家中度过生命的最后时光,杜塞尔多夫大学儿童医院设立了儿科姑息家庭护理服务。在过去20年里,一个专业的儿科姑息治疗团队从无组织的志愿活动发展而来。未来的目标是为所有儿科姑息治疗患者提供全面的专业服务,并改善与驻地儿科医生和儿科姑息护理服务机构的合作。此外,建立网络以及专业人员之间的适当沟通是必不可少的。