Taylor-Young Patricia, Hildebrandt Eugenie
Portland Veterans Administration Medical Center, 3710 SW US Veterans Hospital Rd. (P2NR), Portland, OR 97239, USA.
Gastroenterol Nurs. 2009 May-Jun;32(3):180-7. doi: 10.1097/SGA.0b013e3181a80655.
The purpose of this case study was to gain an in-depth understanding of the mental, physical, and emotional burden of being infected with the hepatitis C virus (HCV) from the perspective of an individual living with the disease and undergoing antiviral treatment. Interviews were conducted during and after antiviral therapy with 1 participant chosen from a Midwest HCV clinic population. Interviews were audio recorded, transcribed verbatim, and coded. Content analysis and thematic analysis were performed. The participant reviewed and validated the themes and the interpretation of the themes. Ten categories were identified, which were subsequently integrated in 4 themes: (1) transition or process of change, (2) maintaining control over one's life, (3) social support and communication, and (4) side effects. The results of this study can assist healthcare providers to understand what individuals experience in the course of HCV infection and its treatment. This knowledge will assist them to provide effective patient-centered care. To provide such care, it is imperative that healthcare providers understand the physical, psychological, social, and professional impact that the diagnosis of HCV infection and antiviral therapy has on individuals.
本案例研究的目的是从一名感染丙型肝炎病毒（HCV）且正在接受抗病毒治疗的患者角度，深入了解感染该病毒所带来的心理、身体和情感负担。从美国中西部一家HCV诊所的患者群体中选取了1名参与者，在抗病毒治疗期间及之后对其进行访谈。访谈进行了录音，逐字转录并编码。进行了内容分析和主题分析。参与者对主题及主题的解释进行了审核和验证。确定了10个类别，随后整合为4个主题：（1）转变或变化过程；（2）掌控自己的生活；（3）社会支持与沟通；（4）副作用。本研究结果可帮助医疗服务提供者了解个体在HCV感染及其治疗过程中的经历。这些知识将帮助他们提供以患者为中心的有效护理。为了提供这样的护理，医疗服务提供者必须了解HCV感染诊断和抗病毒治疗对个体在身体、心理、社会和职业方面的影响。
