白癜风的负担：与生活质量相关的患者特征
The burden of vitiligo: patient characteristics associated with quality of life.
作者信息
Linthorst Homan May W, Spuls Phyllis I, de Korte John, Bos Jan D, Sprangers Mirjam A, van der Veen J P Wietze
机构信息
Netherlands Institute for Pigment Disorders, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.
出版信息
J Am Acad Dermatol. 2009 Sep;61(3):411-20. doi: 10.1016/j.jaad.2009.03.022. Epub 2009 Jul 3.
BACKGROUND
Vitiligo is commonly regarded as a harmless cosmetic skin problem in Western societies, and the importance of treating patients with vitiligo is often underestimated.
OBJECTIVE
We sought to determine the clinical and sociodemographic variables that adversely affect the quality of life in adult patients with generalized vitiligo so that these variables can be considered in the treatment and care.
METHODS
A total of 245 adult patients with generalized vitiligo completed two quality-of-life questionnaires (the Medical Outcomes Study 36-Item Short-form General Health Survey and the Skindex-29). Physicians assessed sociodemographic and clinical characteristics of these patients.
RESULTS
Dark skin type, vitiligo located on the chest, and treatment in the past appeared to have an adverse impact on the psychosocial domains of quality of life. Moreover, itch was reported by 20% of the patients in this study.
LIMITATIONS
Psychiatric comorbidity was not evaluated in the analyses.
CONCLUSION
Generalized vitiligo is a serious skin disorder with an adverse impact on the emotional state, comparable with that of other major skin diseases.
背景
在西方社会，白癜风通常被视为一种无害的皮肤美容问题，对白癜风患者进行治疗的重要性常常被低估。
目的
我们试图确定对泛发性白癜风成年患者生活质量产生不利影响的临床和社会人口统计学变量，以便在治疗和护理中考虑这些变量。
方法
共有245例泛发性白癜风成年患者完成了两份生活质量问卷（医学结局研究简明健康调查问卷36项简表和皮肤病生活质量指数29项量表）。医生评估了这些患者的社会人口统计学和临床特征。
结果
深色皮肤类型、胸部白癜风以及既往接受过治疗似乎对生活质量的心理社会领域有不利影响。此外，本研究中20%的患者报告有瘙痒症状。
局限性
分析中未评估精神疾病共病情况。
结论
泛发性白癜风是一种严重的皮肤疾病，对情绪状态有不利影响，与其他主要皮肤病相当。
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