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[精子或卵子捐赠:关于向同胞披露信息的方式和时间做出决定的动态过程]

[Sperm or oocyte donation: the dynamics of making the decision regarding the method and timing of disclosure of information to the sibling].

作者信息

Eitan-Schiller Yael, Seidman Daniel S

机构信息

Department of Obstetrics and Gynecology, Chaim Sheba Medical Center, Tel Hashomer.

出版信息

Harefuah. 2009 Apr;148(4):251-5, 275.

PMID:19630349
Abstract

A dramatic increase in the number of children born as a result of gamete donation has occurred worldwide over the past decade. Concurrent to the acceleration in the use of gamete donation there has been a growing movement advocating non-anonymity in donor programs and disclosure to the offspring of donor gamete conceptions. The fact that current recommendations concerning gamete donation differ widely among various countries reflects the Lack of consensus around the world, especially in regard to two major issues: donor anonymity and the disclosure decision. In the past, the donors' identity was always kept anonymous, and they were ensured full secrecy. Recently, a 'double track' policy has become increasingly popular. Under this policy, the donor has the choice to enter the program as either an anonymous or an identifiable donor, while the recipient can choose between these two types of donors. This scheme allows the recipients to decide in the future the degree of disclosure that best meets their interest in involving the donor in their lives. The parent's decision regarding disclosure of gamete donation before the child reflects their general philosophy and their individual values regarding the way they manage their Lives, and specifically how they desire to fulfill their role as parents. Study resuLts show that individual counseling appeared to be helpfuL and appreciated by study participants. This is particuLarLy true when delivered without judgment or directive personal opinion. Peer support, often in the form of professionally-led groups, was most highly valued. It seems likely that peer support, not only reduces the sense of isolation and stigma by normalizing the donor experience, but facilitates information acquisition derived from the shared, personal, lived experiences of other parents in the same unique life situation.

摘要

在过去十年中,全球范围内因配子捐赠而出生的儿童数量急剧增加。在配子捐赠使用加速的同时,倡导捐赠者计划不匿名并向配子捐赠受孕的后代披露信息的运动也在不断发展。目前关于配子捐赠的建议在不同国家差异很大,这一事实反映了全球缺乏共识,尤其是在两个主要问题上:捐赠者匿名和披露决定。过去,捐赠者的身份一直是保密的,并且确保他们完全保密。最近,“双轨”政策越来越受欢迎。根据这项政策,捐赠者可以选择以匿名或可识别的捐赠者身份进入该计划,而接受者可以在这两种类型的捐赠者之间进行选择。这种方案允许接受者在未来决定最符合他们让捐赠者参与其生活兴趣的披露程度。父母在孩子面前关于披露配子捐赠的决定反映了他们对生活管理方式的总体理念和个人价值观,特别是他们希望如何履行父母的角色。研究结果表明,个体咨询似乎对研究参与者有帮助且受到赞赏。当咨询不带有评判或指导性个人意见时尤其如此。同伴支持,通常是以专业指导小组的形式,最受重视。同伴支持不仅通过使捐赠经历正常化来减少孤立感和耻辱感,而且有助于从处于相同独特生活状况的其他父母的共同个人生活经历中获取信息。

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[Sperm or oocyte donation: the dynamics of making the decision regarding the method and timing of disclosure of information to the sibling].[精子或卵子捐赠:关于向同胞披露信息的方式和时间做出决定的动态过程]
Harefuah. 2009 Apr;148(4):251-5, 275.
2
The impact of disclosure on donor gamete participants: donors, intended parents and offspring.信息披露对捐赠配子参与者的影响:捐赠者、意向父母和后代。
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Donor gametes: anonymous or identified?供体配子:匿名还是可识别?
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Two decades after legislation on identifiable donors in Sweden: are recipient couples ready to be open about using gamete donation?在瑞典的可识别供体立法出台二十年后:接受者夫妇是否准备好公开使用配子捐赠?
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Gamete donation: parents' experiences of searching for their child's donor siblings and donor.配子捐赠:父母寻找孩子的供体兄弟姐妹和供体的经历。
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It takes two to tango: information-sharing with offspring among heterosexual parents following identity-release sperm donation.探戈需两人共舞:身份公开的精子捐赠后异性父母与子女间的信息共享
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Attitudes and disclosure decisions of Finnish parents with children conceived using donor sperm.使用捐赠精子受孕的芬兰父母的态度和披露决策。
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Survey report of gamete donors' and recipients' preferences regarding disclosure of third party reproduction outcomes and genetic risk information.配子捐赠者和受赠者对第三方生殖结果及遗传风险信息披露的偏好调查报告。
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How parents whose children have been conceived with donor gametes make their disclosure decision: contexts, influences, and couple dynamics.那些通过捐赠配子受孕的孩子的父母是如何做出披露决定的:背景、影响因素及夫妻关系动态。
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Attitudes of anonymous and identity-release oocyte donors towards future contact with donor offspring.匿名捐卵者和身份公开捐卵者对未来与捐卵后代接触的态度。
Hum Reprod. 2019 Apr 1;34(4):672-678. doi: 10.1093/humrep/dez009.

引用本文的文献

1
The long path to pregnancy: early experience with dual anonymous gamete donation in a European in vitro fertilisation referral centre.漫长的求孕之路:欧洲体外受精转诊中心中双匿名配子捐赠的早期经验。
Reprod Health. 2010 Aug 11;7:20. doi: 10.1186/1742-4755-7-20.