Finch Alison, Gibson Faith
University College London Hospitals NHS Foundation Trust, 13th Floor, University College Hospital, 235 Euston Road, London NW1 2BU, United Kingdom.
Eur J Oncol Nurs. 2009 Jul;13(3):213-22. doi: 10.1016/j.ejon.2009.03.010. Epub 2009 Jul 26.
Grief and its many manifestations can irrevocably change family life and the multiple relationships within. Informed by this, one is led to consider the extent an adult nurse provides a family focus to cancer care. It arguably remains wanting, particularly in adult healthcare environments where 'family' can still infer 'spouse' and the needs of children and young people at home may as a result go unrecognized. Little attention has been paid to what or how young people should be told about their parent's cancer diagnosis, but from the limited research that has been undertaken, parents are seeking help with this aspect of communication.
An interpretative phenomenological approach was used to explore the research question: How do young people experience learning about their parent's cancer diagnosis? This was a single centre study recruiting seven participants, aged 14-18 years, which included two sets of siblings. Participants were interviewed on one occasion only.
The interview data revealed six dimensions of the young person's experience of learning about a parental diagnosis: first hearing about a parent's diagnosis; vulnerability of self and others, communication within the family, feeling supported in experience, experience and support of school, experience and support of hospital. Young people overwhelmingly advocate honesty and openness in family communication about cancer.
Our participants demonstrated strength and resourcefulness in adapting to their parent's cancer. Meaning making was central to our study's intent and still today it offers a perspective of the diagnosis period that has not been fully explored in the extant literature.
悲伤及其多种表现形式会不可逆转地改变家庭生活以及其中的多重关系。基于此，人们不禁会思考成年护士在癌症护理中关注家庭的程度。可以说这方面仍存在不足，尤其是在成人医疗环境中，“家庭”仍可能仅指“配偶”，家中儿童和年轻人的需求可能因此未得到认可。对于应该告知年轻人关于其父母癌症诊断的内容或方式，关注甚少，但从已开展的有限研究来看，父母在这一沟通方面寻求帮助。
采用解释现象学方法来探究研究问题：年轻人得知父母癌症诊断时的体验是怎样的？这是一项单中心研究，招募了7名年龄在14至18岁之间的参与者，其中包括两组兄弟姐妹。参与者仅接受了一次访谈。
访谈数据揭示了年轻人得知父母诊断时体验的六个维度：首次听闻父母的诊断；自我和他人的脆弱性、家庭内部的沟通、在经历中感受到支持、学校的经历和支持、医院的经历和支持。年轻人绝大多数主张在家庭关于癌症的沟通中保持诚实和开放。
我们的参与者在适应父母患癌方面展现出了力量和机智。意义建构是我们研究意图的核心，直至今日，它仍提供了一个在现有文献中尚未得到充分探索的诊断期视角。
