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青少年与患癌父母共同生活时的经历:一项定性研究。

Adolescents' Experiences When Living With a Parent With Cancer: A Qualitative Study.

作者信息

Azarbarzin Mehrdad, Malekian Azadeh, Taleghani Fariba

机构信息

Students' Research Center, Nursing and Midwifery Faculty, Isfahan University of Medical Sciences, Isfahan, IR Iran.

Psychosomatic Research Center, Isfahan University of Medical Sciences, Isfahan, IR Iran.

出版信息

Iran Red Crescent Med J. 2016 Jan 13;18(1):e26410. doi: 10.5812/ircmj.26410. eCollection 2016 Jan.

DOI:10.5812/ircmj.26410
PMID:26889396
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4753004/
Abstract

BACKGROUND

Cancer affects not only the patient but also their entire family, especially adolescents. Adolescents whose parents are ill may manifest their distress through changes in school performance, physical complaints of pain and discomfort, as well as changes in social and interpersonal relations. There has been very little research about the effects of cancer on adolescents in Iran.

OBJECTIVES

The purpose of this qualitative study was to explore the Iranian adolescents' experiences when living with a parent with cancer.

PATIENTS AND METHODS

In this research, the descriptive-explorative approach was used. There were a total of 27 participants. Purposeful sampling was used and data collection methods were semi-structured deep interviews. Constant comparative analysis was used to study the data.

RESULTS

The findings of this study showed that the main experiences of these adolescents were categorized into seven themes: 1- psychological problems of adolescents; 2- supportive-educative needs; 3- cancer as a two edged sword in family relationships; 4- stages of confrontation with the parent's cancer; 5- effect of cancer on social dimensions; 6- affective and helpful supportive agents; 7- Need of support for education under special conditions.

CONCLUSIONS

This research showed that Iranian adolescents had the same experiences as other adolescents in other countries in many aspects yet in some issues, such as religious strategy, they had strong religious beliefs that would help them cope with their parents' cancer. Also it was shown that we must plan a program in which education and support should be provided to enable adolescents to cope with this detrimental situation with minimal disruption.

摘要

背景

癌症不仅影响患者本人,还会波及整个家庭,尤其是青少年。父母身患癌症的青少年可能会通过学业成绩的变化、身体疼痛和不适的抱怨以及社交和人际关系的改变来表现他们的痛苦。在伊朗,关于癌症对青少年影响的研究非常少。

目的

这项定性研究的目的是探索伊朗青少年与患癌父母共同生活的经历。

患者与方法

本研究采用描述性探索方法。共有27名参与者。采用目的抽样法,数据收集方法为半结构化深度访谈。使用持续比较分析法对数据进行研究。

结果

本研究结果表明,这些青少年的主要经历可分为七个主题:1-青少年的心理问题;2-支持性教育需求;3-癌症在家庭关系中是一把双刃剑;4-应对父母癌症的阶段;5-癌症对社会层面的影响;6-情感上有帮助的支持因素;7-特殊情况下对教育支持的需求。

结论

本研究表明,伊朗青少年在许多方面与其他国家的青少年有相同的经历,但在一些问题上,如宗教策略,他们有强烈的宗教信仰,这有助于他们应对父母的癌症。此外,研究还表明,我们必须制定一个计划,提供教育和支持,使青少年能够以最小的干扰应对这种不利情况。

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Psychooncology. 2014 May;23(5):493-506. doi: 10.1002/pon.3457. Epub 2013 Dec 9.
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Cancer incidence and prevalence in isfahan: application of mortality data to estimates and projects for the period 2001-2015.伊斯法罕的癌症发病率与患病率:利用死亡率数据进行2001 - 2015年期间的估计与预测
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Meanings and aspects of quality of life for cancer patients: a descriptive exploratory qualitative study.癌症患者生活质量的意义与维度:一项描述性探索性定性研究
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Experience of Iranian persons receiving hemodialysis: a descriptive, exploratory study.伊朗血液透析患者的体验:一项描述性、探索性研究。
Nurs Health Sci. 2011 Mar;13(1):88-93. doi: 10.1111/j.1442-2018.2011.00586.x.
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Adolescents' emotional reactions to parental cancer: effect on emotional and behavioral problems.青少年对父母癌症的情绪反应:对情绪和行为问题的影响。
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