Gray Cynthia Frisina, Siebert Melissa, Aisen Mindy, Gaebler-Spira Deborah
Reaching For The Stars. A Foundation of Hope for Children with Cerebral Palsy, 3000 Old Alabama Road, Alpharetta, GA 30022, USA.
Phys Med Rehabil Clin N Am. 2009 Aug;20(3):577-85. doi: 10.1016/j.pmr.2009.04.001.
Rehabilitation management of children with cerebral palsy (CP) brings together parents and doctors. The primary goal of the contact is to improve the individual child's potential and to improve the child's functional outcomes. Frequently, parents are interested in not just their own child, but the population of children with cerebral palsy. Physicians can provide information for both purposes. Successful parent-professional relationships are rewarding and powerful. Combining the passion of the parent and the expertise of the physician can enhance collaboration for advocacy efforts that improve outcomes for children with cerebral palsy. An increasingly important component in the parent-medical collaboration is the identification of networks of local and national support for families of children with cerebral palsy. Fortunately, parents and organizations focused on children with cerebral palsy are seeing the necessity for collaboration to build community awareness, implement education programs, and spearhead pediatric cerebral palsy advocacy on a nationwide basis.
脑瘫患儿的康复管理需要家长和医生共同参与。这种接触的主要目标是提高每个孩子的潜能,并改善孩子的功能结局。通常,家长不仅关心自己的孩子,也关注脑瘫患儿群体。医生可以为这两个目的提供信息。成功的家长与专业人员的关系是有益且强大的。将家长的热情与医生的专业知识相结合,可以加强合作,推动倡导工作,从而改善脑瘫患儿的结局。家长与医疗合作中一个日益重要的组成部分是识别为脑瘫患儿家庭提供支持的地方和国家网络。幸运的是,关注脑瘫患儿的家长和组织已经意识到有必要通过合作来提高社区意识、开展教育项目,并在全国范围内率先推动小儿脑瘫宣传工作。