Klute Glenn K, Kantor Carole, Darrouzet Chris, Wild Helga, Wilkinson Susann, Iveljic Suzana, Creasey Graham
Center of Excellence for Limb Loss Prevention and Prosthetic Engineering, Department of Veterans Affairs Puget Sound Health Care System, Seattle, WA 98108, USA.
J Rehabil Res Dev. 2009;46(3):293-304.
To assess the needs of lower-limb amputees and identify differences between diabetic dysvascular amputees and traumatic amputees, we held a multistakeholder focus-group workshop whose participants included veteran lower-limb amputees, clinicians, researchers, and prosthetic device manufacturers. We conducted the initial workshop sessions as traditional focus-group meetings with homogeneous participant groups generating lists of issues relevant to the individual groups. Subsequent sessions assembled heterogeneous participant groups for a two-phase approach: Discovery and Codesign. The Discovery phase used observation and discussion to elicit specific needs. The Codesign phase focused on emergent topics and explored potential solutions. The participants identified needs associated with desired improvements to the socket system, foot and ankle components, and alignment with the residual limb. One need was a comprehensive understanding of the recovery path following amputation that could be addressed through enhanced education and communication. Another need was remote monitoring systems that could potentially improve quality of care. No dichotomy of needs between diabetic dysvascular amputees and traumatic amputees was evident among the participants of this workshop. The lively, open-ended discussions produced numerous suggestions for improving amputee quality of life that are listed to facilitate future research and development.
为评估下肢截肢者的需求，并确定糖尿病血管性病变截肢者与创伤性截肢者之间的差异，我们举办了一次多利益相关方焦点小组研讨会，参与者包括退伍军人下肢截肢者、临床医生、研究人员和假肢设备制造商。我们以传统焦点小组会议的形式开展了最初的研讨会环节，让同类参与者群体列出与各自群体相关的问题清单。随后的环节则将不同类别的参与者群体聚集在一起，采用两阶段方法：探索阶段和协同设计阶段。探索阶段通过观察和讨论来引出具体需求。协同设计阶段专注于新出现的主题，并探索潜在的解决方案。参与者们确定了与改善接受腔系统、足部和踝部组件以及与残肢适配相关的需求。其中一个需求是全面了解截肢后的康复路径，这可以通过加强教育和沟通来实现。另一个需求是远程监测系统，它有可能提高护理质量。在本次研讨会的参与者中，糖尿病血管性病变截肢者和创伤性截肢者之间的需求没有明显差异。活跃的、开放式讨论产生了许多改善截肢者生活质量的建议，现列出这些建议以促进未来的研究与开发。
