Gobet Rita, Weber Daniel, Horst Maya, Yamamoto Shelby, Fischer Joachim
Division of Pediatric Urology, University Children's Hospital, Zurich, Switzerland.
J Urol. 2009 Oct;182(4 Suppl):1819-23. doi: 10.1016/j.juro.2009.02.064. Epub 2009 Aug 18.
We describe the long-term psychosocial and sexual outcomes of patients born with bladder exstrophy treated with ureterosigmoidostomy at our institution.
Of 42 patients born with bladder exstrophy between 1937 and 1968, 28 were located, of whom 25 agreed to participate in this study. Evaluation consisted of studying pediatric and adult medical records, medical examination, and reports of sexual and social history.
Four female and 21 male patients with a mean age of 50 years (range 39 to 67) were evaluated. Of the patients 21 (84%) were married or lived in a stable relationship, 6 (24%) had several children after normal conception and an additional 2 (8%) became parents with assisted reproductive technology. Nine patients (36%) reported no sexual activity or were unable to engage in sexual intercourse. All patients except 2 are professionally and socially successful.
The long-term followup of this study of 37 to 68 years provides valuable information on patients who live with bladder exstrophy during a long period. Most followed patients who were born with bladder exstrophy and treated with ureterosigmoidostomy were able to lead satisfactory lives socially and professionally. However, at least 36% of the patients are severely restricted in their sexual lives.
我们描述了在我院接受输尿管乙状结肠吻合术治疗的膀胱外翻患者的长期心理社会和性方面的结局。
在1937年至1968年间出生的42例膀胱外翻患者中，找到28例，其中25例同意参与本研究。评估包括研究儿科和成人病历、体格检查以及性和社会史报告。
评估了4例女性和21例男性患者，平均年龄50岁（范围39至67岁）。在这些患者中，21例（84%）已婚或处于稳定关系，6例（24%）在正常受孕后育有子女，另外2例（8%）通过辅助生殖技术成为父母。9例患者（36%）报告无性活动或无法进行性交。除2例患者外，所有患者在职业和社会方面都很成功。
这项长达37至68年的长期随访研究为长期患有膀胱外翻的患者提供了有价值的信息。大多数接受输尿管乙状结肠吻合术治疗的膀胱外翻患者在社会和职业方面能够过上满意的生活。然而，至少36%的患者在性生活方面受到严重限制。
