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向患者披露有害医疗差错:处理三个棘手案例。

Disclosing harmful medical errors to patients: tackling three tough cases.

作者信息

Gallagher Thomas H, Bell Sigall K, Smith Kelly M, Mello Michelle M, McDonald Timothy B

机构信息

Departments of Medicine, Bioethics, and Humanities, University of Washington, Seattle, WA.

Department of Medicine, Beth Israel-Deaconess Medical Center, Harvard Medical School, Boston, MA.

出版信息

Chest. 2009 Sep;136(3):897-903. doi: 10.1378/chest.09-0030.

Abstract

A gap exists between recommendations to disclose errors to patients and current practice. This gap may reflect important, yet unanswered questions about implementing disclosure principles. We explore some of these unanswered questions by presenting three real cases that pose challenging disclosure dilemmas. The first case involves a pancreas transplant that failed due to the pancreas graft being discarded, an error that was not disclosed partly because the family did not ask clarifying questions. Relying on patient or family questions to determine the content of disclosure is problematic. We propose a standard of materiality that can help clinicians to decide what information to disclose. The second case involves a fatal diagnostic error that the patient's widower was unaware had happened. The error was not disclosed out of concern that disclosure would cause the widower more harm than good. This case highlights how institutions can overlook patients' and families' needs following errors and emphasizes that benevolent deception has little role in disclosure. Institutions should consider whether involving neutral third parties could make disclosures more patient centered. The third case presents an intraoperative cardiac arrest due to a large air embolism where uncertainty around the clinical event was high and complicated the disclosure. Uncertainty is common to many medical errors but should not deter open conversations with patients and families about what is and is not known about the event. Continued discussion within the medical profession about applying disclosure principles to real-world cases can help to better meet patients' and families' needs following medical errors.

摘要

向患者披露医疗差错的建议与当前实际做法之间存在差距。这种差距可能反映出在实施披露原则方面存在一些重要但尚未得到解答的问题。我们通过展示三个引发具有挑战性的披露困境的真实案例来探讨其中一些未得到解答的问题。第一个案例涉及一例胰腺移植手术失败,原因是胰腺移植物被丢弃,部分由于患者家属未提出澄清问题,这一差错未被披露。依靠患者或家属的问题来确定披露内容是有问题的。我们提出一项重要性标准,可帮助临床医生决定披露哪些信息。第二个案例涉及一例致命的诊断错误,患者的鳏夫并不知道该错误已经发生。出于担心披露会给鳏夫带来的坏处多于好处,该错误未被披露出来。这个案例凸显了医疗机构在出现差错后可能会忽视患者及其家属的需求,并强调善意欺骗在披露中作用不大。医疗机构应考虑引入中立第三方是否能使披露更以患者为中心。第三个案例呈现了因大量空气栓塞导致的术中心脏骤停,该临床事件存在高度不确定性,这给披露工作带来了复杂性。不确定性在许多医疗差错中都很常见,但不应妨碍与患者及其家属就该事件已知和未知的情况进行坦诚交流。医学界持续讨论如何将披露原则应用于实际案例,有助于在医疗差错发生后更好地满足患者及其家属的需求。

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