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推动姑息治疗成为一项人权。

Advancing palliative care as a human right.

机构信息

School of Public Health & Family Medicine, University of Cape Town, Cape Town, South Africa.

出版信息

J Pain Symptom Manage. 2009 Nov;38(5):767-74. doi: 10.1016/j.jpainsymman.2009.03.003. Epub 2009 Sep 24.

Abstract

The international palliative care community has articulated a simple but challenging proposition that palliative care is an international human right. International human rights covenants and the discipline of palliative care have, as common themes, the inherent dignity of the individual and the principles of universality and nondiscrimination. However, when we consider the evidence for the effectiveness of palliative care, the lack of palliative care provision for those who may benefit from it is of grave concern. Three disciplines (palliative care, public health, and human rights) are now interacting with a growing resonance. The maturing of palliative care as a clinical specialty and academic discipline has coincided with the development of a public health approach to global and community-wide health problems. The care of the dying is a public health issue. Given that death is both inevitable and universal, the care of people with life-limiting illness stands equal to all other public health issues. The International Covenant on Economic, Social and Cultural Rights (ICESCR) includes the right to health care and General Comment 14 (paragraph 34) CESCR stipulates that "States are under the obligation to respect the right to health by, inter alia, refraining from denying or limiting equal access for all persons, ... to preventive, curative and palliative health services." However, these rights are seen to be aspirational-rights to be achieved progressively over time by each signatory nation to the maximum capacity of their available resources. Although a government may use insufficient resources as a justification for inadequacies of its response to palliative care and pain management, General Comment 14 set out "core obligations" and "obligations of comparable priority" in the provision of health care and placed the burden on governments to justify "that every effort has nevertheless been made to use all available resources at its disposal in order to satisfy, as a matter of priority, [these] obligations." This article describes recent advocacy activities and explores practical strategies for the palliative care community to use within a human rights framework to advance palliative care development worldwide.

摘要

国际姑息治疗社区提出了一个简单但具有挑战性的主张,即姑息治疗是一项国际人权。国际人权公约和姑息治疗学科都以个人的固有尊严以及普遍性和平等不歧视原则为共同主题。然而,当我们考虑姑息治疗有效性的证据时,那些可能从中受益的人却没有得到姑息治疗,这令人深感担忧。现在,姑息治疗、公共卫生和人权这三个学科正在相互作用,并产生越来越大的共鸣。姑息治疗作为一种临床专业和学术学科的成熟发展,恰逢全球和社区范围内健康问题采取公共卫生方法的时机。临终关怀是一个公共卫生问题。鉴于死亡既是不可避免的,也是普遍存在的,因此,对患有绝症的人的关怀与所有其他公共卫生问题同等重要。《经济、社会、文化权利国际公约》(ICESCR)包括医疗保健权利,而委员会第 14 号一般性意见(第 34 段)规定,“各国承担尊重健康权的义务,除其他外,不拒绝或限制所有人平等获得……预防、治疗和姑息保健服务的机会。”然而,这些权利被视为一种愿望,即每个签署国应根据其可用资源的最大能力,逐步实现这些权利。尽管政府可能会将资源不足作为其对姑息治疗和疼痛管理反应不足的理由,但第 14 号一般性意见列出了提供医疗保健方面的“核心义务”和“同等优先的义务”,并将责任推给政府,要求其证明“已尽一切努力利用其可支配的所有现有资源,作为优先事项,履行[这些]义务。”本文描述了姑息治疗界最近的宣传活动,并探讨了姑息治疗界在人权框架内为推动全球姑息治疗发展而使用的实际策略。

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