Ploem M C Corrette
Academisch Medisch Centrum/Universiteit van Amsterdam, afd. Sociale Geneeskunde, Amsterdam, The Netherlands.
Ned Tijdschr Geneeskd. 2009;153:A600.
Registration of an individual's ethnicity is, in the light of the potential risks of stigmatization and discrimination, rightfully considered a sensitive issue. Traditionally, privacy legislation offers special legal protection in the collection, registration etc. of data relating to race and ethnic background. However, if it can be established that registration of ethnicity is necessary for providing good care, registration is lawful. However, registration for health research purposes requires the explicit consent of the persons involved.
鉴于存在污名化和歧视的潜在风险,个人种族登记理所当然地被视为一个敏感问题。传统上,隐私立法在收集、登记等涉及种族和族裔背景的数据方面提供特殊的法律保护。然而,如果能够确定种族登记对于提供优质护理是必要的,那么登记就是合法的。然而,出于健康研究目的的登记需要相关人员的明确同意。