• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

[在满足条件的情况下允许登记种族信息]

[Registration of ethnicity allowed with conditions].

作者信息

Ploem M C Corrette

机构信息

Academisch Medisch Centrum/Universiteit van Amsterdam, afd. Sociale Geneeskunde, Amsterdam, The Netherlands.

出版信息

Ned Tijdschr Geneeskd. 2009;153:A600.

PMID:19785803
Abstract

Registration of an individual's ethnicity is, in the light of the potential risks of stigmatization and discrimination, rightfully considered a sensitive issue. Traditionally, privacy legislation offers special legal protection in the collection, registration etc. of data relating to race and ethnic background. However, if it can be established that registration of ethnicity is necessary for providing good care, registration is lawful. However, registration for health research purposes requires the explicit consent of the persons involved.

摘要

鉴于存在污名化和歧视的潜在风险,个人种族登记理所当然地被视为一个敏感问题。传统上,隐私立法在收集、登记等涉及种族和族裔背景的数据方面提供特殊的法律保护。然而,如果能够确定种族登记对于提供优质护理是必要的,那么登记就是合法的。然而,出于健康研究目的的登记需要相关人员的明确同意。

相似文献

1
[Registration of ethnicity allowed with conditions].[在满足条件的情况下允许登记种族信息]
Ned Tijdschr Geneeskd. 2009;153:A600.
2
[Responsible care requires registration of ethnic origin].[责任关怀要求登记种族出身]。
Ned Tijdschr Geneeskd. 2009;153:A337.
3
[Health care registries a community asset. Centralized registries of health care data can save life and improve quality of life].[医疗保健登记册——一项社区资产。医疗保健数据的集中登记册可以挽救生命并提高生活质量]
Lakartidningen. 1999 Sep 1;96(35):3668-73.
4
The challenges of abstracting reliable information on patient race and ethnicity: initial observations from the Data Improvement Project on Patient Ethnicity and Race (DIPPER).提取关于患者种族和族裔可靠信息的挑战:患者族裔和种族数据改进项目(DIPPER)的初步观察结果
J Registry Manag. 2012 Summer;39(2):76-80.
5
On the coding and reporting of race and ethnicity in New Hampshire for purposes of cancer reporting.关于新罕布什尔州癌症报告中种族和族裔的编码与报告。
Ethn Dis. 2005 Spring;15(2):324-31.
6
Minors' consent to diagnostic and lawful therapeutic procedures relating to care and treatment for pregnancy or contagious diseases.
Del Code Annot Del. 1976;Title 13 Section 708.
7
[Registration of patient data. "Active refusal" the way in England].[患者数据登记。“主动拒绝”在英国的方式]
Lakartidningen. 2014;111(11):445.
8
Reporting and representation of race/ethnicity in published randomized trials.已发表的随机试验中种族/族裔的报告与呈现
Am Heart J. 2009 Nov;158(5):742-7. doi: 10.1016/j.ahj.2009.08.018. Epub 2009 Sep 29.
9
[Are medical professionals allowed to share data from patient health records with clinical quality registries in the Netherlands?].
Ned Tijdschr Geneeskd. 2024 Sep 26;168:D8151.
10
Cancer registries fear collapse. Need for patient consent for cancer registration creates logistical nightmare.癌症登记机构担心崩溃。癌症登记需要患者同意,这造成了后勤方面的噩梦。
BMJ. 2001 Mar 24;322(7288):730.