Rosén M, Ericson A
Epidemiologiskt centrum, Socialstyrelsen, Stockholm.
Lakartidningen. 1999 Sep 1;96(35):3668-73.
The article is a review of how national epidemiological data bases in Sweden can be used for research and statistical purposes. Over 500 major applications from research groups and others are dealt with annually by the National Cancer, Hospital discharge, Medical birth, and Cause-of-death registries, providing essential data for studies which have yielded well over a thousand peer-reviewed scientific papers. In over 40 years' Swedish experience of administering the registration of sensitive patient-specific information on diseases, there has not been a single case of data misuse. It is concluded that the benefits of national epidemiological registries far outweigh the risks and marginal costs of maintaining them.
本文是一篇关于瑞典国家流行病学数据库如何用于研究和统计目的的综述。国家癌症登记处、医院出院登记处、医学出生登记处和死因登记处每年处理来自研究团队及其他方面的500多项主要申请，为研究提供重要数据，这些研究已产出一千多篇同行评审的科学论文。在瑞典40多年管理敏感的患者特定疾病信息登记的经验中，从未发生过一起数据滥用事件。结论是，国家流行病学登记处的益处远远超过维护它们的风险和边际成本。
