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斯里兰卡科伦坡丝虫性淋巴水肿患者的生活质量。

Quality of life in filarial lymphoedema patients in Colombo, Sri Lanka.

机构信息

Department of Parasitology, Faculty of Medical Sciences, University of Sri Jayawardenepura, Nugegoda, Sri Lanka.

出版信息

Trans R Soc Trop Med Hyg. 2010 Mar;104(3):219-24. doi: 10.1016/j.trstmh.2009.08.005. Epub 2009 Sep 30.

DOI:10.1016/j.trstmh.2009.08.005
PMID:19796782
Abstract

The quality of life (QOL) was assessed in 141 filarial lymphoedema patients and 128 healthy people in the Colombo district of Sri Lanka. Information was gathered by administering the validated translated version of the WHO 100-item QOL questionnaire (WHOQOL-100), which ascertains an individual's perception of QOL in the physical, psychological, level of independence, environmental and spiritual domains, as well as the general QOL. Healthy controls had a better QOL in all domains as well as in the overall general QOL, when compared to patients with lymphoedema. Several facets such as pain and discomfort, sleep and rest, activities of daily living, dependence on medication and treatment, working capacity and social support were significantly affected by the acute adenolymphangitis attack/s patients had suffered. The environmental and spiritual domains were significantly affected by the maximum grade of lymphoedema. The significant difference in the QOL as perceived by patients suffering from filarial lymphoedema and apparently healthy individuals reiterates the importance of morbidity control in patients already affected by filarial lymphoedema.

摘要

在斯里兰卡科伦坡地区,我们评估了 141 例丝虫性淋巴水肿患者和 128 名健康人的生活质量(QOL)。通过使用世界卫生组织 100 项生活质量问卷(WHOQOL-100)的经过验证的翻译版本收集信息,该问卷确定了个体在身体、心理、独立性水平、环境和精神领域以及总体生活质量方面的生活质量感知。与淋巴水肿患者相比,健康对照组在所有领域以及总体一般生活质量方面都有更好的生活质量。疼痛和不适、睡眠和休息、日常生活活动、对药物和治疗的依赖、工作能力和社会支持等几个方面都受到了急性淋巴结炎发作的严重影响。环境和精神领域受到淋巴水肿严重程度的显著影响。患有丝虫性淋巴水肿的患者和明显健康个体感知到的生活质量的显著差异,再次强调了对已经受到丝虫性淋巴水肿影响的患者进行发病率控制的重要性。

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