Division of General Medicine, Department of Medicine, The University of Texas Health Science Center, 7703 Floyd Curl Drive, San Antonio, TX 78229-3900, USA.
J Gen Intern Med. 2009 Nov;24(11):1240-7. doi: 10.1007/s11606-009-1115-5. Epub 2009 Oct 2.
Generalist physicians must often counsel patients or their families about the right time to die, but feel ill-prepared to do so. Patient beliefs may help guide the discussions.
Because little prior research addresses such beliefs, we investigated them in this exploratory, hypothesis-generating study.
Anticipating culture as a key influence, we interviewed 26 Mexican Americans (MAs), 18 Euro-Americans (EAs), and 14 African Americans (AAs) and content-analyzed their responses.
Nearly all subjects regardless of ethnic group or gender said God determines (at least partially) a patient's right time to die, and serious disease signals it. Yet subjects differed by ethnic group over other signals for that time. Patient suffering and dependence on "artificial" life support signaled it for the MAs; patient acceptance of death signaled it for the EAs; and patient suffering and family presence at or before the death signaled it for the AAs. Subjects also differed by gender over other beliefs. In all ethnic groups more men than women said the time of death is unpredictable; but more women than men said the time of death is preset, and family suffering signals it. Furthermore, most MA women--but few others--explicitly declared that family have an important say in determining a patient's right time to die. No confounding occurred by religion.
Americans may share some beliefs about the right time to die but differ by ethnic group or gender over other beliefs about that time. Quality end-of-life care requires accommodating such differences whenever reasonable.
通科医生经常需要为患者或其家属提供关于何时离世的建议,但他们往往对此准备不足。患者的信念可能有助于指导这些讨论。
由于之前几乎没有研究涉及此类信念,因此我们在这项探索性的、产生假设的研究中对此进行了调查。
考虑到文化是一个关键影响因素,我们采访了 26 名墨西哥裔美国人(MA)、18 名欧裔美国人(EA)和 14 名非裔美国人(AA),并对他们的回答进行了内容分析。
几乎所有受试者,无论其种族或性别如何,都表示上帝(至少部分地)决定了患者何时离世,而严重疾病则是一个信号。然而,不同种族群体对于这一时刻的其他信号存在差异。对于 MA 来说,患者的痛苦和对“人工”生命支持的依赖是信号;对于 EA 来说,患者对死亡的接受是信号;而对于 AA 来说,患者的痛苦和家人在死亡时或之前的存在是信号。此外,不同性别在其他信念上也存在差异。在所有种族群体中,男性比女性更多地表示死亡时间是不可预测的;但更多的女性比男性表示死亡时间是预设的,而家庭的痛苦则是信号。此外,大多数 MA 女性——但其他女性则不然——明确表示,家人在决定患者何时离世方面有重要的发言权。宗教并没有造成混淆。
美国人可能对何时离世有一些共同的信念,但在其他关于死亡时间的信念上,他们因种族或性别而异。在合理的情况下,高质量的临终关怀需要考虑到这些差异。