Ege University School of Nursing, Izmiotar, Turkey.
Eur J Oncol Nurs. 2010 Apr;14(2):119-24. doi: 10.1016/j.ejon.2009.08.002. Epub 2009 Oct 12.
The study's aim was to compare cancer patients' and family caregivers' perceptions of symptom distress in patients receiving chemotherapy in Turkey.
The study used a cross-sectional design. A convenience sample of 80 dyads, composed of cancer patients and their caregivers, completed the Rotterdam Symptom Checklist (RSCL) in an out-patient chemotherapy unit. This scale is a 27-item Likert -type scale assessing both physical and psychological symptoms in cancer patients.
Primary caregivers' physical symptom scores were moderately correlated with patients' physical symptom scores (r = 0,74; P < 0.01). Levels of patient - caregiver agreement were better for loss of hair (ICC 0.80) and lack of appetite (ICC 0.68) on physical symptoms. Level of agreement was moderate for 16 symptoms of the 27 symptoms of the RSCL.
The study illustrates that family caregivers play a vital role in the assessment of cancer symptoms, particularly in Turkey where contact with professional health carers may be limited after discharge, and argues for greater support and better education for carers in relation to all aspects of this caring role. However, family caregivers have greater difficulty in achieving high levels of accuracy on psychological as opposed to physical symptoms.
本研究旨在比较土耳其接受化疗的癌症患者及其家属对患者症状困扰的认知。
本研究采用横断面设计。在一家门诊化疗病房，一个由 80 对癌症患者及其护理者组成的便利样本使用罗特堡症状清单（RSCL）完成调查。该量表共 27 个项目，采用李克特量表评估癌症患者的生理和心理症状。
初级护理者的生理症状评分与患者的生理症状评分呈中度相关（r=0.74；P<0.01）。在生理症状方面，脱发（ICC 0.80）和食欲不振（ICC 0.68）的患者-护理者一致性水平较高。在 RSCL 的 27 个症状中，有 16 个症状的一致性水平为中度。
本研究表明，在评估癌症症状方面，家庭护理者发挥着至关重要的作用，尤其是在土耳其，患者出院后可能与专业医疗保健者的接触有限，因此需要为护理者提供更多支持和更好的教育，以帮助他们承担这一护理角色的所有方面。然而，与生理症状相比，家庭护理者在评估心理症状时准确性更高。
