黑色素瘤高危家族对医疗服务提供者风险沟通的认知
Melanoma high-risk families' perceived health care provider risk communication.
作者信息
Loescher Lois J, Crist Janice D, Cranmer Lee, Curiel-Lewandrowski Clara, Warneke James A
机构信息
University of Arizona College of Nursing Tucson, AZ, USA.
出版信息
J Cancer Educ. 2009;24(4):301-7. doi: 10.1080/08858190902997290.
BACKGROUND
Families with a melanoma history are at risk of melanoma. Melanoma survival improves when people are aware of their risk and ways to modify it. We explored at-risk families' perceived risk communication from healthcare providers.
METHODS
Qualitative description.
RESULTS
Participants perceived: (1) few provider discussions of melanoma risk or risk-modifying behaviors; (2) a desire to trust information from providers; (3) the healthcare system constrains communication; and (4) concerns about provider competence and caring regarding worrisome lesions.
CONCLUSIONS
Providers should provide clear, comprehensive, accurate, and consistent messages about melanoma to persons at high risk; messages also convey competence and caring.
背景
有黑色素瘤病史的家族存在患黑色素瘤的风险。当人们意识到自身风险及降低风险的方法时，黑色素瘤患者的生存率会提高。我们探讨了高危家族对医疗服务提供者风险沟通的认知情况。
方法
定性描述。
结果
参与者认为：（1）医疗服务提供者很少讨论黑色素瘤风险或风险修正行为；（2）希望信任医疗服务提供者提供的信息；（3）医疗系统限制了沟通；（4）担心医疗服务提供者对令人担忧的病变的专业能力和关怀程度。
结论
医疗服务提供者应向高危人群提供关于黑色素瘤的清晰、全面、准确和一致的信息；这些信息还应传达专业能力和关怀。
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