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斯洛文尼亚皮肤黑色素瘤幸存者的健康行为变化——一项定性研究

Health Behaviour Changes of Cutaneous Melanoma Survivors in Slovenia - A Qualitative Study.

作者信息

Butina Mirjam Rogl, Švab Igor, Perić Barbara, Bartenjev Igor

机构信息

Dermatology Outpatient Clinic Bartenjev Rogl, Derčeva 35, 1000 Ljubljana, Slovenia.

University of Ljubljana, Faculty of Medicine, Department of Family Medicine, Poljanski nasip 58, 1000 Ljubljana, Slovenia.

出版信息

Zdr Varst. 2019 Mar 26;58(2):70-77. doi: 10.2478/sjph-2019-0009. eCollection 2019 Mar.

DOI:10.2478/sjph-2019-0009
PMID:30984297
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6455013/
Abstract

INTRODUCTION

Most data related to cutaneous melanoma survivors' health behaviour comes from epidemiological studies and is predominantly concerned with safe-sun behaviour and self-examination. Data regarding other changes of health behaviour are scarce and so are qualitative studies in this realm. The aim of our research is to acquire insight into the experiences of patients with cutaneous melanoma in Slovenia. How did they react to the diagnosis, which changes did they introduce in their health behaviour and how do they assess the role of family doctors?

METHODS

Using the qualitative approach of collective case reports, a demographically diverse group of patients with different forms and stages of cutaneous melanoma was selected. Semi-structured interviews conducted by a psychologist were recorded and transcribed verbatim. For data processing, the approach of Qualitative Content Analysis was applied.

RESULTS

We integrated interviewees' experiences after the diagnosis of cutaneous melanoma in several subcategories: either they did not introduce any changes or they mentioned changing their habits when exposed to the sun and performing skin self-examination; they also emphasized their ways of dealing with stress and raising awareness about melanoma among family members and friends. The role of family doctors in the prevention and care appears unclear; even contradictory.

CONCLUSION

We obtained insight into the experiences of Slovenian patients with cutaneous melanoma. The interviewees prioritised safe behaviour in the sun, strengthening of psychological stability and raising awareness about melanoma. Findings will be used in the creation of a structured questionnaire for national epidemiological survey.

摘要

引言

大多数与皮肤黑色素瘤幸存者健康行为相关的数据来自流行病学研究,主要涉及防晒行为和自我检查。关于健康行为其他变化的数据稀缺,该领域的定性研究也很少。我们研究的目的是深入了解斯洛文尼亚皮肤黑色素瘤患者的经历。他们对诊断有何反应,在健康行为方面有哪些改变,以及如何评价家庭医生的作用?

方法

采用集体病例报告的定性方法,选取了一组人口统计学特征多样、患有不同形式和阶段皮肤黑色素瘤的患者。由一名心理学家进行的半结构化访谈进行了录音,并逐字转录。在数据处理方面,采用了定性内容分析方法。

结果

我们将皮肤黑色素瘤诊断后受访者的经历归纳为几个子类别:他们要么没有做出任何改变,要么提到在晒太阳和进行皮肤自我检查时改变了习惯;他们还强调了应对压力的方式以及提高家人和朋友对黑色素瘤的认识。家庭医生在预防和护理中的作用似乎不明确,甚至相互矛盾。

结论

我们深入了解了斯洛文尼亚皮肤黑色素瘤患者的经历。受访者将阳光下的安全行为、增强心理稳定性以及提高对黑色素瘤的认识列为优先事项。研究结果将用于创建一份用于全国流行病学调查的结构化问卷。