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父亲在急性淋巴细胞白血病患儿家庭中角色的观点和理解:诠释现象学分析。

Fathers' views and understanding of their roles in families with a child with acute lymphoblastic leukaemia: an interpretative phenomenological analysis.

机构信息

Southern Health and Social Care Trust, Newry, Northern Ireland.

出版信息

J Health Psychol. 2009 Nov;14(8):1268-80. doi: 10.1177/1359105309342291.

Abstract

This study explored how fathers of children diagnosed with acute lymphoblastic leukaemia (ALL) perceived and understood the roles they had within their family over the course of their child's illness and treatment. In-depth semi-structured interviews were conducted with five fathers. Transcripts were analysed using interpretative phenomenological analysis (IPA). The major themes that emerged were: adjusting to the diagnosis; the experience of maternal gate-keeping; striving for normalization; experiences of giving and receiving support. Overall, the fathers perceived themselves as having significant responsibility in helping their child and family cope with the illness experience. Clinical implications, including the need for professionals to recognize and more openly acknowledge the father's position, are considered.

摘要

本研究探讨了急性淋巴细胞白血病(ALL)患儿的父亲如何看待和理解他们在孩子患病和治疗过程中在家庭中的角色。对五名父亲进行了深入的半结构化访谈。使用解释现象学分析(IPA)对转录本进行了分析。出现的主要主题是:适应诊断;母亲把关的体验;努力实现正常化;给予和接受支持的体验。总的来说,父亲们认为自己在帮助孩子和家庭应对疾病方面负有重要责任。考虑了临床意义,包括专业人员需要认识到并更公开地承认父亲的地位。

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