Department of Sociology, University of Helsinki, Helsinki, Finland.
Scand J Public Health. 2010 Feb;38(1):46-52. doi: 10.1177/1403494809353824. Epub 2009 Nov 11.
To ascertain the attitudes towards the use of existing diagnostic and research samples, the setting up of a national biobank, and different types of informed consent among Finns.
A population survey of 2,400 randomly selected Finns aged 24-65 was conducted at the beginning of 2007.
A total of 1,195 responses (50%) were received after one reminder. Of the respondents, 83% said that they had little or no knowledge of what biobanks were. Despite this, 77% regarded the setting up of a national biobank in a positive light. One third (34%) would not attach any conditions on their consent, while 42% said that it was important to regain consent when the new study contains diverging steps. One third (30%) wanted consent to be regained for every new research project, and 44% would like to decide what type of research their samples would be used for if they were included in a national biobank. One third of both men and women approved of the use of their samples in research involving private enterprises.
In general, Finns were positive toward the setting up of a national biobank, as well as public-private partnerships, even though they considered their knowledge of biobanking to be limited. This, however, did not mean that they were indifferent to the use of their samples, but most wanted the ability to control how their samples are used.
了解芬兰人对使用现有诊断和研究样本、建立国家生物库以及不同类型知情同意的态度。
2007 年初，对 2400 名随机抽取的 24-65 岁芬兰人进行了一项人口调查。
在发出一次提醒后，共收到 1195 份回复（50%）。在答复者中，83%的人表示对生物库知之甚少或一无所知。尽管如此，77%的人对建立国家生物库持积极态度。三分之一（34%）的人不会附加任何条件，而 42%的人表示当新研究包含不同步骤时，重新获得同意很重要。三分之一（30%）的人希望为每个新的研究项目重新获得同意，而 44%的人希望在他们的样本被纳入国家生物库时，决定其样本将用于哪种类型的研究。三分之一的男性和女性都赞成将其样本用于涉及私营企业的研究。
总体而言，芬兰人对建立国家生物库以及公私合作伙伴关系持积极态度，尽管他们认为自己对生物库的了解有限。然而，这并不意味着他们对使用自己的样本漠不关心，而是大多数人希望有能力控制自己样本的使用方式。
