School of Social Work, University of British Columbia, Vancouver, Canada.
Palliat Med. 2010 Jul;24(5):510-22. doi: 10.1177/0269216309351380. Epub 2009 Nov 12.
The role of culture is significant in hospice palliative care (HPC). While mainstream HPC has been well described in many Western countries, there is no conceptual clarity regarding the meaning of HPC among minority cultures and ethnicities. In this article we describe and critically appraise the findings of a literature synthesis of 15 qualitative studies regarding the conceptualization of HPC among culturally diverse populations. Three primary themes emerged regarding HPC. They highlight: (i) that HPC should attend to the physical, psychosocial and spiritual aspects of death and dying; (ii) that the ideal HPC provider demonstrates excellent knowledge and expertise about end-of-life care, and is respectful, genuine and compassionate; and (iii) that HPC should include a range of resources that alleviate the potential burdens associated with end-of-life care. The synthesis of this knowledge suggests that expectations regarding the scope of HPC across ethnic and cultural groups have more similarities than differences to the goals of mainstream HPC.
文化在临终关怀（Hospice Palliative Care，HPC）中具有重要作用。虽然在许多西方国家已经对主流的 HPC 进行了很好的描述，但在少数民族文化和族裔群体中，HPC 的含义并没有明确的概念。在本文中，我们描述并批判性地评价了一项关于文化多样性人群对 HPC 的概念化的 15 项定性研究的文献综合的结果。HPC 有三个主要主题。它们强调：（i）HPC 应该关注死亡和临终的身体、心理社会和精神方面；（ii）理想的 HPC 提供者应该对临终关怀有出色的知识和专业技能，并且要尊重、真诚和富有同情心；（iii）HPC 应该包括一系列资源，以减轻与临终关怀相关的潜在负担。对这些知识的综合表明，不同种族和文化群体对 HPC 范围的期望与主流 HPC 的目标有更多的相似之处，而不是差异。
