School of Nursing, University of Alabama at Birmingham, Birmingham, AL 35294, USA.
Psychooncology. 2010 Oct;19(10):1112-5. doi: 10.1002/pon.1648.
Fertility and childbearing issues are the major quality of life concerns among young breast cancer survivors. Practical approaches are needed to convey reproductive health information. The Fertility and Cancer Project (FCP) is a dedicated research project that provides online reproductive health and fertility education. We report FCP participants' (a) changes in mood and functioning and (b) changes in knowledge of fertility and cancer from baseline to 6-month follow-up.
Participants completed five self-report baseline measures, accessed FCP content and participated in online discussions. At 6 months post FCP study entry, participants were asked to complete follow-up self-reports.
One hundred and six breast cancer survivors from 8 countries participated in the FCP. Mean age at diagnosis was 34.3 years; mean time since diagnosis was 22 months. Significant change was detected in improved physical functioning (p=0.019) and social functioning (p=0.02). Significant changes were also noted in improved fertility knowledge (p=0.011).
Preliminary evidence shows that young breast cancer survivors derive improved mood and knowledge benefit from FCP participation. Internet-based approach may be a viable format for engaging this population of cancer survivors.
生育和育儿问题是年轻乳腺癌幸存者主要关注的生活质量问题。需要采取切实可行的方法来传达生殖健康信息。生育与癌症计划(FCP)是一个专门的研究项目,提供在线生殖健康和生育教育。我们报告了 FCP 参与者(a)情绪和功能的变化,以及(b)从基线到 6 个月随访时对生育和癌症的知识变化。
参与者完成了五项自我报告的基线测量,访问了 FCP 内容并参与了在线讨论。在 FCP 研究开始后 6 个月,要求参与者完成随访自我报告。
来自 8 个国家的 106 名乳腺癌幸存者参加了 FCP。诊断时的平均年龄为 34.3 岁;诊断后平均时间为 22 个月。在身体功能(p=0.019)和社会功能(p=0.02)的改善方面发现了显著变化。在生育知识的改善方面也有显著变化(p=0.011)。
初步证据表明,年轻的乳腺癌幸存者从 FCP 的参与中获得了情绪和知识的改善。基于互联网的方法可能是吸引这一癌症幸存者群体的可行模式。