Meneses Karen, McNees Patrick, Azuero Andres, Jukkala Angela
School of Nursing, University of Alabama at Birmingham, USA.
Oncol Nurs Forum. 2010 Mar;37(2):191-7. doi: 10.1188/10.ONF.191-197.
PURPOSE/OBJECTIVES: To describe the development of the Fertility and Cancer Project (FCP), an Internet approach to supplement information about fertility; describe FCP study participants' characteristics, fertility, cancer knowledge, and Internet use; and assess perceived information and support from the oncology team.
Descriptive.
Internet, international.
106 young survivors of breast cancer from eight countries.
FCP content was developed from the literature and interviews with breast cancer survivors, oncology professionals, and young women without cancer who were having fertility problems. Participants learned about the FCP through advocacy groups, cancer care providers, and Web searches. After enrollment, they completed five surveys: sociodemographic, breast cancer and health status, knowledge of fertility, Internet use, and the Medical Outcomes Study-Social Support Survey.
Sociodemographics, breast cancer, health status, fertility knowledge, Internet use, and social support.
Prior to diagnosis, most survivors had no fertility concerns, but more than 14% reported fertility problems. Following breast cancer diagnosis and treatment, 23 reported fertility problems. About half reported receiving little information about fertility options from the oncology team and were referred to a reproductive endocrinologist. Internet use to obtain support and health information was common. Most reported frequent computer use and Internet access in their homes. Participants were most knowledgeable of the general and treatment-related factors that could affect fertility; they were least knowledgeable of infertility treatment.
Results provide preliminary evidence about the demographic, cancer treatment, and support characteristics of young survivors of breast cancer who seek online information about fertility.
The Internet is a promising format for engaging young cancer survivors who seek information about fertility and cancer. Future studies can evaluate FCP effectiveness in delivering education and support interventions.
目的/目标：描述生育与癌症项目（FCP）的开展情况，这是一种通过互联网补充生育相关信息的方法；描述FCP研究参与者的特征、生育情况、癌症知识及互联网使用情况；评估参与者对肿瘤团队提供的信息及支持的感知。
描述性研究。
互联网，国际性。
来自八个国家的106名年轻乳腺癌幸存者。
FCP的内容基于文献以及对乳腺癌幸存者、肿瘤学专业人员和有生育问题的未患癌年轻女性的访谈而制定。参与者通过宣传团体、癌症护理提供者和网络搜索了解到FCP。入组后，他们完成了五项调查：社会人口统计学调查、乳腺癌与健康状况调查、生育知识调查、互联网使用情况调查以及医学结局研究-社会支持调查。
社会人口统计学、乳腺癌、健康状况、生育知识、互联网使用和社会支持。
在确诊前，大多数幸存者没有生育方面的担忧，但超过14%的人报告有生育问题。在乳腺癌诊断和治疗后，有23人报告有生育问题。约一半的人表示从肿瘤团队获得的关于生育选择的信息很少，并被转介给生殖内分泌专家。通过互联网获取支持和健康信息很常见。大多数人报告在家中经常使用电脑和上网。参与者对可能影响生育的一般因素和治疗相关因素了解最多；对不孕症治疗了解最少。
研究结果为寻求生育相关在线信息的年轻乳腺癌幸存者的人口统计学、癌症治疗及支持特征提供了初步证据。
互联网是吸引寻求生育和癌症信息的年轻癌症幸存者的一种有前景的形式。未来的研究可以评估FCP在提供教育和支持干预方面的有效性。
