The University of Tokyo, Graduate School of Humanities and Sociology, Global COE Programme Death and Life Studies, 7-3-1 Hongo, Bunkyo-ku, Tokyo113-0033, Japan.
Soc Sci Med. 2010 Feb;70(4):616-22. doi: 10.1016/j.socscimed.2009.10.036. Epub 2009 Nov 22.
Despite a number of guidelines issued in Anglo-American countries over the past few decades for forgoing treatment stating that there is no ethically relevant difference between withholding and withdrawing life-sustaining treatments (LST), it is recognized that many healthcare professionals in Japan as well as some of their western counterparts do not agree with this statement. This research was conducted to investigate the barriers that prevent physicians from withdrawing specific LST in critical care settings, focusing mainly on the modes of withdrawal of LST, in what the authors believe was the first study of its kind anywhere in the world. In 2006-2007, in-depth, face-to-face, semistructured interviews were conducted with 35 physicians working at emergency and critical care facilities across Japan. We elicited their experiences, attitudes, and perceptions regarding withdrawal of mechanical ventilation and other LST. The process of data analysis followed the grounded theory approach. We found that the psychosocial resistance of physicians to withdrawal of artificial devices varied according to the modes of withdrawal, showing a strong resistance to withdrawal of mechanical ventilation that requires physicians to halt the treatment when continuation of its mechanical operation is possible. However, there was little resistance to the withdrawal of percutaneous cardiopulmonary support and artificial liver support when their continuation was mechanically or physiologically impossible. The physicians shared a desire for a "soft landing" of the patient, that is, a slow and gradual death without drastic and immediate changes, which serves the psychosocial needs of the people surrounding the patient. For that purpose, vasopressors were often withheld and withdrawn. The findings suggest what the Japanese physicians avoid is not what they call a life-shortening act but an act that would not lead to a soft landing, or a slow death that looks 'natural' in the eyes of those surrounding the patient. The purpose of constructing such a final scene is believed to fulfill the psychosocial needs of the patient's family and the physicians, who emphasize on how death feels to those surrounding the patient. Unless withdrawing LST would lead to a soft landing, Japanese clinicians, who recognize that the results of withdrawing LST affect not only the patient but those around the patient, are likely to feel that there is an ethically relevant difference between withholding and withdrawing LST.
尽管在过去几十年中,英美学国家发布了许多关于放弃治疗的指南,指出在不维持生命的治疗(LST)方面, withholding 和 withdrawing 之间没有伦理上的区别,但人们认识到,日本的许多医疗保健专业人员以及他们的一些西方同行并不认同这一说法。这项研究旨在调查阻碍医生在重症监护环境中撤回特定 LST 的障碍,主要关注 LST 的撤回方式,作者认为这是世界上首例此类研究。2006-2007 年,在日本各地的急诊和重症监护设施工作的 35 名医生进行了深入的面对面半结构化访谈。我们引出了他们关于停止机械通气和其他 LST 的经验、态度和看法。数据分析遵循扎根理论方法。我们发现,医生对撤回人工设备的心理社会抵制因撤回方式而异,对需要医生在机械操作继续进行时停止治疗的机械通气的撤回表现出强烈的抵制。然而,当继续机械或生理上不可能时,对经皮心肺支持和人工肝支持的撤回几乎没有抵抗力。医生们都希望患者能够“软着陆”,即缓慢而逐渐的死亡,而没有剧烈和直接的变化,这满足了患者周围人群的心理社会需求。为此,经常停止和撤回升压药。研究结果表明,日本医生避免的不是他们所说的缩短生命的行为,而是不会导致软着陆或缓慢死亡的行为,这种死亡在患者周围的人眼中看起来“自然”。构建这样一个最终场景的目的是为了满足患者家属和医生的心理社会需求,他们强调患者周围的人对死亡的感受。除非撤回 LST 会导致软着陆,否则日本临床医生认识到撤回 LST 的结果不仅影响患者,还影响患者周围的人,他们可能会认为 withholding 和 withdrawing LST 之间存在伦理相关的区别。