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患者、个体还是伴侣?让慢性病患者参与自身护理。

Patients, persons or partners? Involving those with chronic disease in their care.

作者信息

McWilliam Carol L

机构信息

Faculty of Health Sciences, The University of Western Ontario, London, Ontario N6A 5C1, Canada.

出版信息

Chronic Illn. 2009 Dec;5(4):277-92. doi: 10.1177/1742395309349315. Epub 2009 Nov 19.

Abstract

Self-care management is essential for effective chronic disease management. Yet prevailing approaches of healthcare practitioners often undermine the efforts of those who require on-going medical attention for chronic conditions, emphasizing their status as patients, failing to consider their larger life experience as people, and most importantly, failing to consider them as people with the potential to be partners in their care. This article explores two approaches for professional-patient interaction in chronic disease management, namely, patient-centred care and empowering partnering, illuminating how professionals might better interact with chronically ill individuals who seek their care. The opportunities, challenges, theory and research evidence associated with each approach are explored. The advantages of moving beyond patient-centred care to the empowering partnering approach are elaborated. For people with chronic disease, having the opportunity to engage in the social construction of their own health as a resource for everyday living, the opportunity to experience interdependence rather than dependence/independence throughout on-going healthcare, and the opportunity to optimize their potential for self-care management of chronic disease are important justifications for being involved in an empowering partnering approach to their chronic disease management.

摘要

自我护理管理对于有效的慢性病管理至关重要。然而,医疗从业者普遍采用的方法往往会破坏那些需要长期医疗护理的慢性病患者的努力,强调他们作为患者的身份,没有考虑到他们作为普通人更广泛的生活经历,最重要的是,没有将他们视为有潜力成为自身护理伙伴的个体。本文探讨了慢性病管理中专业人员与患者互动的两种方法,即患者中心护理和赋权合作,阐明了专业人员如何更好地与寻求其护理的慢性病患者互动。探讨了与每种方法相关的机遇、挑战、理论和研究证据。阐述了从患者中心护理转向赋权合作方法的优势。对于慢性病患者来说,有机会参与自身健康的社会建构,将其作为日常生活资源,有机会在整个持续医疗过程中体验相互依存而非依赖/独立,以及有机会优化其慢性病自我护理管理的潜力,这些都是参与赋权合作方法进行慢性病管理的重要理由。

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