University of Aberdeen, United Kingdom.
Indian J Pediatr. 2009 Dec;76(12):1231-5. doi: 10.1007/s12098-009-0262-3.
Health-related quality of life (HRQL) experienced by children with cancer is more important than ever before as survival rates are increasing. The aim of this study was to assess the HRQL of children with cancer in a developing country, using physician proxy assessments.
The Health Utilities Index (HUI) was chosen as the measurement tool and physicians' assessments were obtained using an HUI proxy-respondent interview-administered questionnaire.
A total of 45 patients and their physicians (n=6) were recruited from 2 hospitals in Andhra Pradesh, India. Most of the children had acute lymphoblastic leukaemia. There were no differences in patterns observed between cancer types for the child's HRQL, but there was wide variation in the total HRQL scores among the children. This variation was more evident in certain aspects of children's life such as emotion and pain.
This study has shown that HRQL as determined by physician proxy assessments in children with cancer in India is compromised, matching results in similar populations elsewhere.
随着癌症患儿存活率的提高，他们的健康相关生活质量（HRQL）变得比以往任何时候都更加重要。本研究旨在使用医生代理评估来评估发展中国家癌症患儿的 HRQL。
选择健康效用指数（HUI）作为测量工具，并使用 HUI 代理应答者访谈式问卷获得医生的评估。
共从印度安得拉邦的 2 家医院招募了 45 名患儿及其医生（n=6）。大多数患儿患有急性淋巴细胞白血病。不同癌症类型患儿的 HRQL 模式无差异，但患儿的总体 HRQL 评分差异较大。这种差异在儿童生活的某些方面更为明显，如情绪和疼痛。
本研究表明，印度癌症患儿的 HRQL 由医生代理评估确定，与其他类似人群的结果相匹配。
