Geneva University Hospitals, Community Medicine and Primary Care Department, Geneva, Switzerland.
Patient Educ Couns. 2010 Aug;80(2):185-90. doi: 10.1016/j.pec.2009.10.023. Epub 2009 Nov 30.
We explored how patients from Sub Saharan Africa (SSA) infected with HIV and living in Switzerland, and their treating physicians perceived their health, whether these perceptions correlated with biological markers, and what organisational changes participants considered likely to improve quality of care.
A prospective standardized questionnaire was submitted to HIV-infected patients from SSA and their physicians. Results were correlated with biological data.
While physicians deduced improved health status from laboratory results, these did not provide an adequate surrogate marker of good health for patients. Patients experienced important social and economical difficulties with adverse consequences on their mental health. They requested social assistance, whereas physicians sought improved cultural competency.
Patients and physicians did not agree in their evaluation of patients' health status. Patients did not perceive their health through biological markers, but linked their mental health with their socioeconomic context. Physicians underestimated patients' biological health and their evaluation of global health.
Exploring difficulties perceived by physicians with specific patients lead to identification of structural weaknesses, resulting in suggestions to improve physicians' medical training and patients' care. This illustrates the importance of accessing patients' perspective and not relying solely on physicians' perception of the problem.
本研究旨在探讨居住在瑞士的撒哈拉以南非洲(SSA)地区的 HIV 感染者及其治疗医生如何感知他们的健康状况,这些感知与生物学标志物是否相关,以及参与者认为哪些组织变革可能会改善医疗质量。
对来自 SSA 的 HIV 感染者及其医生进行前瞻性标准化问卷调查。结果与生物学数据相关联。
尽管医生从实验室结果推断出患者的健康状况有所改善,但这些结果并不能为患者提供良好健康状况的充分替代生物标志物。患者经历了严重的社会和经济困难,对他们的心理健康产生了不利影响。他们需要社会援助,而医生则寻求提高文化能力。
患者和医生对患者健康状况的评估存在分歧。患者没有通过生物标志物来感知自己的健康状况,而是将心理健康与社会经济背景联系起来。医生低估了患者的生理健康和他们对整体健康的评估。
探索医生对特定患者的困难感知有助于发现结构上的弱点,从而提出改进医生医疗培训和患者护理的建议。这说明了了解患者视角的重要性,而不仅仅依赖于医生对问题的看法。