E Medea Scientific Institute, Conegliano Pieve di Soligo Research Centre, Conegliano, Italy.
Disabil Rehabil. 2009;31 Suppl 1:S159-69. doi: 10.3109/09638280903317849.
The available tools used to describe childhood dystonia tend to offer a monodimensional view of the person functioning, which may overlook significant changes induced by treatment. We applied the International Classification of Functioning, Disability and Health (ICF) perspective to the description of the clinical picture of a dystonic child treated with deep brain stimulation (DBS) to get a more global representation of the treatment effect.
An 8-year-old child with secondary dystonia was selected within the institutional program for advanced treatment of pediatric dystonia as a candidate for bilateral implantation of electrodes into globus pallidus and chronic stimulation. The International Classification of Functioning, Disability and Health -children and youth (ICF-CY) based project and program format was used by the rehabilitation team to define the clinical picture, rehabilitation objectives, and to verify the outcome.
The rehabilitation project and program included 39 ICF categories: 14 body functions, two body structures, 18 activities and participation, and five environment. On such basis we defined the individualized specific rehabilitation objectives and we checked for clinical changes after DBS.
The ICF-CY format provides a complete and balanced profile of functioning in secondary dystonia treated with DBS and it could offer a novel perspective for outcome evaluation.
现有的用于描述儿童肌张力障碍的工具往往提供了一个单维的个体功能视图，这可能会忽略治疗引起的重大变化。我们将国际功能、残疾和健康分类（ICF）的观点应用于接受深部脑刺激（DBS）治疗的肌张力障碍儿童的临床描述，以更全面地描述治疗效果。
在机构内为儿科肌张力障碍提供高级治疗的计划中，选择了一名 8 岁的继发性肌张力障碍儿童，作为双侧将电极植入苍白球和慢性刺激的候选者。康复团队使用基于国际功能、残疾和健康分类-儿童和青少年（ICF-CY）的项目和方案格式来定义临床情况、康复目标，并验证结果。
康复项目和方案包括 39 个 ICF 类别：14 个身体功能、两个身体结构、18 个活动和参与以及五个环境。在此基础上，我们定义了个体化的具体康复目标，并在 DBS 后检查了临床变化。
ICF-CY 格式为接受 DBS 治疗的继发性肌张力障碍提供了一个完整和平衡的功能概况，并为结果评估提供了一个新的视角。
