Yelnik A, Laffont I
université Paris, groupe hospitalier Lariboisière-Fernand Widal, AP-HP, France.
Ann Phys Rehabil Med. 2010 Feb;53(1):60-7. doi: 10.1016/j.rehab.2009.11.006. Epub 2009 Dec 6.
After several decades of stability, polio survivors often experience new signs and symptoms of their condition, characterized by global and muscular fatigue, decreased muscular strength and pain. The hypothesis of a potential underlying psychological component has been suggested.
This article aims to report how polio survivors cope with their condition based on an analysis of the literature and the authors' experience.
The literature does not report a higher prevalence of psychological disorders (mood disorders, depression) in polio survivors than in the general population. Conversely, the psychological impact of the patients' decreasing abilities, regardless of the cause, is regularly reported. Most patients report a restricted involvement in their daily life activities.
It is essential to be aware of the patients' experience in coping with polio as children as well as the medical treatments they went through in order to better understand their various types of complaints and sometimes their reluctance to go back to a medical environment. With such widespread information on post-polio syndrome (PPS) and all the uncertainties surrounding it, patients fear a late onset deterioration of their condition. In order to provide the best therapeutic advice, it is essential to have a good knowledge of the symptoms but also take the time and listen to patients in order to differentiate the underlying physical and psychological components in symptoms of pain and fatigue.
在经历了数十年的病情稳定之后，脊髓灰质炎幸存者常常会出现该疾病的新体征和症状，其特征为全身性和肌肉性疲劳、肌肉力量下降以及疼痛。有人提出了可能存在潜在心理因素的假说。
本文旨在通过对文献及作者经验的分析，报告脊髓灰质炎幸存者如何应对自身状况。
文献并未表明脊髓灰质炎幸存者中心理障碍（情绪障碍、抑郁症）的患病率高于普通人群。相反，经常有报告称患者能力下降所带来的心理影响，无论其原因如何。大多数患者表示在日常生活活动中的参与度受限。
了解患者儿时应对脊髓灰质炎的经历以及他们所接受的医学治疗至关重要，以便更好地理解他们的各种主诉，以及有时他们不愿重返医疗环境的原因。鉴于有关小儿麻痹后遗症（PPS）的信息广泛传播以及围绕它的所有不确定性，患者担心自己的病情会在后期恶化。为了提供最佳的治疗建议，不仅要充分了解症状，还必须花时间倾听患者的心声，以便区分疼痛和疲劳症状中潜在的身体和心理因素。
