Department of Cardiology, Ryhov County Hospital, Jönköping, Sweden.
Eur J Heart Fail. 2010 Jan;12(1):25-31. doi: 10.1093/eurjhf/hfp175.
Guidelines on how to diagnose and treat patients with heart failure (HF) are published regularly. However, many patients do not fulfil the diagnostic criteria and are not treated with recommended drugs. The Swedish Heart Failure Registry (S-HFR) is an instrument which may help to optimize the handling of HF patients.
The S-HFR is an Internet-based registry in which participating centres (units) can record details of their HF patients directly online and transfer data from standardized forms or from computerized patient documentation. Up to December 2007, 16,117 patients from 78 units had been included in the S-HFR. Of these, 10,229 patients had been followed for at least 1 year, and 2133 deaths were recorded. Online reports from the registry showed that electrocardiograms were available for 97% of the patients. Sinus rhythm was found in 51% of patients and atrial fibrillation in 38%. Echocardiography was performed in 83% of the patients. Overall, 77% of patients were treated with angiotensin converting enzyme inhibitors or angiotensin II receptor blockers, 80% were on beta-blockers, 34% on aldosterone antagonists, and 83% on diuretics.
The S-HFR is a valuable tool for improving the management of patients with HF, since it enables participating centres to focus on their own potential for improving diagnoses and medical treatment, through the online reports provided.
有关心力衰竭（HF）患者诊断和治疗的指南定期发布。然而，许多患者并未满足诊断标准，也未接受推荐的药物治疗。瑞典心力衰竭注册（S-HFR）是一种可能有助于优化 HF 患者处理方式的工具。
S-HFR 是一个基于互联网的注册系统，参与中心（单位）可以直接在线记录其 HF 患者的详细信息，并从标准化表格或计算机化患者文档中传输数据。截至 2007 年 12 月，已有 78 个单位的 16117 名患者纳入 S-HFR。其中，10229 名患者至少随访 1 年，记录了 2133 例死亡。来自该注册系统的在线报告显示，97%的患者可提供心电图。51%的患者为窦性心律，38%为心房颤动。83%的患者接受了超声心动图检查。总体而言，77%的患者接受了血管紧张素转换酶抑制剂或血管紧张素 II 受体阻滞剂治疗，80%接受了β受体阻滞剂治疗，34%接受了醛固酮拮抗剂治疗，83%接受了利尿剂治疗。
S-HFR 是改善 HF 患者管理的有价值工具，因为它使参与中心能够通过提供的在线报告，关注自身改善诊断和医疗的潜力。
