VU University Medical Center, Department of Metamedica/Medical Humanities, Amsterdam, The Netherlands.
Health Care Anal. 2010 Dec;18(4):358-73. doi: 10.1007/s10728-009-0139-7.
For the past several years patients have been expected to play a key role in their recovery. Self management and disease management have reached a hype status. Considering these recent trends what does this mean for the division of responsibilities between doctors and patients? What kind of role should healthcare providers play? With findings based on a qualitative research project of an innovative practice for people with Chronic Obstructive Pulmonary Disease (COPD) we reflect on these questions. In-depth interviews conducted with people with COPD, physiotherapists and a pulmonologist show that shifting responsibilities require a supportive attitude from healthcare providers and a dialogical communication between patients and professionals. Our findings show more is needed in order to motivate people with COPD to take responsibility and become co-owners in a process of recovery. The case example illustrates that people with COPD need support from fellow patients to learn to accept their disabilities. Awareness that COPD is more than just a lack of air, that mind and body interact, is a first step to investigate other potential problems and to enhance one's quality of life.
在过去的几年中，患者一直被期望在康复过程中发挥关键作用。自我管理和疾病管理已经达到了炒作的状态。考虑到这些最近的趋势，这对医生和患者之间的责任分工意味着什么？医疗保健提供者应该扮演什么样的角色？基于对慢性阻塞性肺疾病（COPD）创新实践的定性研究项目的结果，我们对这些问题进行了反思。对 COPD 患者、物理治疗师和肺病专家进行的深入访谈表明，责任转移需要医疗保健提供者持支持态度，以及患者和专业人员之间的对话式沟通。我们的研究结果表明，需要采取更多措施来激励 COPD 患者承担责任，并成为康复过程中的共同所有者。案例示例表明，COPD 患者需要从病友那里获得支持，以学会接受自己的残疾。认识到 COPD 不仅仅是缺乏空气，思想和身体相互作用，这是调查其他潜在问题和提高生活质量的第一步。
