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患有痴呆症的个体的研究参与情况。

Research participation of individuals with dementia.

作者信息

Beattie Elizabeth

机构信息

Dementia Collaborative Research Centre, Room 615, Level 6, N Block, School of Nursing and Midwifery, Queensland University of Technology, Kelvin Grove, Queensland, Australia 4059.

出版信息

Res Gerontol Nurs. 2009 Apr;2(2):94-102. doi: 10.3928/19404921-20090401-01.

DOI:10.3928/19404921-20090401-01
PMID:20077970
Abstract

Decisional capacity is a precious component of personhood and is progressively diminished in dementia. Conducting research with individuals with dementia demands a commitment to ensure the quest for knowledge does not overwhelm the rights of those it is intended to protect. The purposes of this article are to describe current understandings of the concept of decisional capacity, describe recent regulatory developments related to the consideration of additional protections for decisionally impaired adults, and provide recommendations for nurse investigators working with this vulnerable group.

摘要

决策能力是人格的一个重要组成部分,在痴呆症中会逐渐衰退。对痴呆症患者进行研究需要承诺确保对知识的探索不会压倒其旨在保护的人群的权利。本文的目的是描述对决策能力概念的当前理解,描述与考虑为决策能力受损的成年人提供额外保护相关的近期监管发展,并为与这一弱势群体合作的护士研究人员提供建议。

相似文献

1
Research participation of individuals with dementia.患有痴呆症的个体的研究参与情况。
Res Gerontol Nurs. 2009 Apr;2(2):94-102. doi: 10.3928/19404921-20090401-01.
2
Considerations of informed consent and decision-making competence in older adults with cognitive impairment.认知障碍老年人的知情同意和决策能力考量
Res Gerontol Nurs. 2009 Apr;2(2):103-11. doi: 10.3928/19404921-20090401-08.
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Informed consent for research involving people with dementia: a grey area.涉及痴呆症患者的研究的知情同意:一个灰色地带。
Contemp Nurse. 2010 Feb-Mar;34(2):230-6. doi: 10.5172/conu.2010.34.2.230.
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A new brief instrument for assessing decisional capacity for clinical research.一种用于评估临床研究决策能力的新型简易工具。
Arch Gen Psychiatry. 2007 Aug;64(8):966-74. doi: 10.1001/archpsyc.64.8.966.
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Exploring the gray areas of informed consent.探索知情同意的灰色地带。
Nurs Manage. 2000 Jul;31(7):20-5; quiz 25-6.
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Is best interests a relevant decision making standard for enrolling non-capacitated subjects into clinical research?最佳利益是否是将无行为能力受试者纳入临床研究的相关决策标准?
J Med Ethics. 2011 Jan;37(1):45-9. doi: 10.1136/jme.2010.037515. Epub 2010 Oct 15.
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Dementia and the law.痴呆与法律
Eur J Health Law. 2006 Sep;13(3):209-17. doi: 10.1163/157180906778852385.
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Consent and assent to participate in research from people with dementia.痴呆症患者参与研究的同意与赞成。
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Decision-making capacity and informed consent to participate in research by cognitively impaired individuals.认知障碍个体参与研究的决策能力和知情同意。
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Nursing roles in health care decision making.护理在医疗保健决策中的作用。
Geriatr Nurs. 2007 Sep-Oct;28(5):280-2. doi: 10.1016/j.gerinurse.2007.08.001.

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