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本文引用的文献

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The Cambridge Behavioural Inventory revised.修订后的剑桥行为量表
Dement Neuropsychol. 2008 Apr-Jun;2(2):102-107. doi: 10.1590/S1980-57642009DN20200005.
2
The National Nursing Home Survey: 2004 overview.《国家疗养院调查:2004年概述》
Vital Health Stat 13. 2009 Jun(167):1-155.
3
Early onset dementia: clinical and social aspects.早发性痴呆:临床与社会层面
Int Psychogeriatr. 2009 Aug;21(4):631-6. doi: 10.1017/S1041610209009223. Epub 2009 May 27.
4
Incidence of early-onset dementias in Cambridgeshire, United Kingdom.英国剑桥郡早发性痴呆症的发病率。
Neurology. 2008 Nov 4;71(19):1496-9. doi: 10.1212/01.wnl.0000334277.16896.fa.
5
[Frontotemporal dementia: a review].[额颞叶痴呆:综述]
Encephale. 2007 Dec;33(6):933-40. doi: 10.1016/j.encep.2006.12.001. Epub 2007 Sep 6.
6
Distinct genetic forms of frontotemporal dementia.额颞叶痴呆的不同遗传形式。
Neurology. 2008 Oct 14;71(16):1220-6. doi: 10.1212/01.wnl.0000319702.37497.72. Epub 2008 Aug 13.
7
Measuring progression in frontotemporal dementia: implications for therapeutic interventions.测量额颞叶痴呆的病情进展:对治疗干预的影响。
Neurology. 2008 May 27;70(22):2046-52. doi: 10.1212/01.wnl.0000313366.76973.8a.
8
The spectrum of recurrent thoughts and behaviors in frontotemporal dementia.额颞叶痴呆中反复出现的思维和行为谱
CNS Spectr. 2008 Mar;13(3):202-8. doi: 10.1017/s1092852900028443.
9
Multidisciplinary design and implementation of a day program specialized for the frontotemporal dementias.针对额颞叶痴呆的日间项目的多学科设计与实施。
Am J Alzheimers Dis Other Demen. 2007;22(6):499-506. doi: 10.1177/1533317507308780.
10
The accurate diagnosis of early-onset dementia.早发性痴呆的准确诊断。
Int J Psychiatry Med. 2006;36(4):401-12. doi: 10.2190/Q6J4-R143-P630-KW41.

照顾额颞叶痴呆年轻患者的困境。

The plight of caring for young patients with frontotemporal dementia.

机构信息

Division of Cognitive and Behavioral Neurology, Memory Disorders Unit, Brigham and Women's Hospital, Harvard Medical School, Boston, MA 02115, USA.

出版信息

Am J Alzheimers Dis Other Demen. 2010 Mar;25(2):109-15. doi: 10.1177/1533317509352335. Epub 2010 Jan 27.

DOI:10.1177/1533317509352335
PMID:20107238
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10845623/
Abstract

We present the case of a 39-year-old patient with frontotemporal dementia. This case depicts the complexities in the process leading to the diagnosis, treatment, and placement of young patients presenting with severe psychiatric symptoms as the first signs of an underlying neurological disease. Obstacles in the health care system and residential placement process that hinder the optimal and timely care of such difficult cases are discussed. Practical solutions are offered that center upon better awareness and education and the provision of additional resources. These interventions are likely to provide a positive return on investment for the medical system and could be used as strong levers for new health policies relevant to younger patients with neurological illness.

摘要

我们呈现了一例 39 岁的额颞叶痴呆患者。该病例描述了在诊断、治疗和安置这些以严重精神症状为首发表现的年轻患者时所面临的复杂性,这些患者患有潜在的神经退行性疾病。讨论了医疗保健系统和住院安置过程中存在的障碍,这些障碍阻碍了对这些困难病例的最佳和及时的护理。提出了一些切实可行的解决方案,其核心是提高认识和教育水平,并提供更多的资源。这些干预措施可能会为医疗系统带来积极的投资回报,并可作为制定与年轻神经疾病患者相关的新卫生政策的有力杠杆。