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展现自我:协商自闭症的标签

Presenting the self: negotiating a label of autism.

作者信息

Brownlow Charlotte

机构信息

The Open University, Centre for Childhood Development and Learning, Briggs Building, Walton Hall, Milton Keynes MK7 6AA, UK.

出版信息

J Intellect Dev Disabil. 2010 Mar;35(1):14-21. doi: 10.3109/13668250903496336.

DOI:10.3109/13668250903496336
PMID:20121662
Abstract

BACKGROUND

An important element in the experiences of people with autism is the key role played by therapeutic interventions. This paper examines the role of therapeutic intervention and the construction of individuals with autism in the therapeutic relationship.

METHOD

The contributions to four online asynchronous discussion lists were analysed using discourse analysis over a 3-month period.

FINDINGS

Two key themes identified in the data are presented. These comprise issues concerning therapeutic intervention and issues related to the employment opportunities of adults with autism.

CONCLUSIONS

In this paper the notion that people with autism must change in order to accommodate the non-autistic world is discussed. The author seeks to present an alternative construction of autism as a difference rather than a deficit or deviance and to examine the negotiation of a place for a person with autism within a neurologically typical dominated society.

摘要

背景

治疗性干预所发挥的关键作用是自闭症患者经历中的一个重要因素。本文探讨了治疗性干预的作用以及自闭症患者在治疗关系中的建构。

方法

在三个月的时间里,运用话语分析对四个在线异步讨论列表的内容进行了分析。

结果

呈现了数据中确定的两个关键主题。这些主题包括与治疗性干预有关的问题以及与成年自闭症患者就业机会相关的问题。

结论

本文讨论了自闭症患者必须改变以适应非自闭症世界这一观念。作者试图提出一种对自闭症的不同建构,即将其视为一种差异而非缺陷或偏差,并探讨在一个由神经典型人群主导的社会中为自闭症患者争取一席之地的协商过程。

相似文献

1
Presenting the self: negotiating a label of autism.展现自我:协商自闭症的标签
J Intellect Dev Disabil. 2010 Mar;35(1):14-21. doi: 10.3109/13668250903496336.
2
Representations of autism: implications for community healthcare practice.自闭症的呈现:对社区医疗实践的影响。
Community Pract. 2009 Jul;82(7):18-21.
3
The costs of services and employment outcomes achieved by adults with autism in the US.美国自闭症成年人所获得的服务成本及就业成果。
Autism. 2009 May;13(3):285-302. doi: 10.1177/1362361309103791.
4
An 8 year follow-up of a specialist supported employment service for high-ability adults with autism or Asperger syndrome.针对患有自闭症或阿斯伯格综合征的高能力成年人的专业支持性就业服务的8年随访。
Autism. 2005 Dec;9(5):533-49. doi: 10.1177/1362361305057871.
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Supported employment improves cognitive performance in adults with Autism.支持性就业可改善自闭症成年人的认知表现。
J Intellect Disabil Res. 2007 Feb;51(Pt 2):142-50. doi: 10.1111/j.1365-2788.2006.00854.x.
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Diagnosis, disclosure, and having autism: an interpretative phenomenological analysis of the perceptions of young people with autism.诊断、披露与患有自闭症:对自闭症青少年认知的解释现象学分析
J Intellect Dev Disabil. 2008 Jun;33(2):99-107. doi: 10.1080/13668250802010394.
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A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006.2005 - 2006年美国儿童自闭症谱系障碍的医疗保健经历及家庭影响的全国概况。
Pediatrics. 2008 Dec;122(6):e1149-58. doi: 10.1542/peds.2008-1057.
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Autistic spectrum disorders 2: diagnosis and management.自闭症谱系障碍2:诊断与管理。
Community Pract. 2006 Apr;79(4):128-30.
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[Sixty years of autism].[自闭症的六十年]
Ned Tijdschr Geneeskd. 2004 May 22;148(21):1024-30.
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Referral trends in mental health services for adults with intellectual disability and autism spectrum disorders.针对患有智力残疾和自闭症谱系障碍的成年人的心理健康服务转诊趋势。
Autism. 2007 Jan;11(1):9-17. doi: 10.1177/1362361307070987.

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Autism Adulthood. 2025 Feb 5;7(1):39-51. doi: 10.1089/aut.2023.0090. eCollection 2025 Feb.
2
Negotiation of Individual and Collective Identities in the Online Discourse of Autistic Adults.自闭症成年人在线话语中个体与集体身份的协商
Autism Adulthood. 2019 Mar 1;1(1):69-78. doi: 10.1089/aut.2018.0029. Epub 2019 Mar 11.
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Selective patient and public involvement: The promise and perils of pharmaceutical intervention for autism.
选择性的患者和公众参与:药物干预自闭症的前景和风险。
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