Huws Jaci C, Jones Robert S P
School of Healthcare Sciences, Bangor University, Wales, UK.
J Intellect Dev Disabil. 2008 Jun;33(2):99-107. doi: 10.1080/13668250802010394.
Although there is extensive research examining parental experiences of assessment and diagnosis of autism, there is a paucity of research from the perspective of individuals with autism.
Semi-structured interviews were conducted with nine young people with high functioning autism who were capable of providing a verbal account of their perceptions of autism and diagnosis experiences. Data were analysed using interpretative phenomenological analysis.
Diagnosis, and the disclosure of the diagnosis of autism, were embedded in respondents' perceptions of "having" autism. This superordinate theme included five themes: (i) disclosure delay, (ii) providing explanations, (iii) potential effects of labelling, (iv) disruptions and opportunities, and (v) acceptance and avoidance.
In relation to the existing literature, it is suggested that the effects of diagnosis, or disclosure of diagnosis, from the perspective of the person with autism be given greater consideration.
尽管有大量研究探讨了父母在自闭症评估和诊断方面的经历，但从自闭症患者的角度进行的研究却很少。
对九名高功能自闭症青少年进行了半结构化访谈，他们能够口头描述自己对自闭症的认知和诊断经历。采用解释现象学分析方法对数据进行分析。
诊断以及自闭症诊断的披露，都融入了受访者对“患有”自闭症的认知中。这个上位主题包括五个主题：（i）披露延迟，（ii）提供解释，（iii）标签化的潜在影响，（iv）干扰与机遇，以及（v）接受与回避。
与现有文献相关，建议从自闭症患者的角度更深入地考虑诊断或诊断披露的影响。
