阿尔茨海默病患者的生活质量：配偶和成年子女照顾者之间的不同看法。
Quality of life of patients with Alzheimer's disease: differential perceptions between spouse and adult child caregivers.
机构信息
Research Unit and Memory and Dementia Assessment Unit, Hospital Santa Caterina, Institut d'Assistència Sanitària, Salt, Spain.
出版信息
Dement Geriatr Cogn Disord. 2010;29(2):97-108. doi: 10.1159/000272423. Epub 2010 Feb 11.
BACKGROUND/AIMS: Little research has been conducted into differences in the perceived quality of life of patients (QoL-p) when comparing spouse and adult child caregivers of people with Alzheimer's disease (AD). The aim of this study was to identify the differential variables in perceived QoL-p between patients and carers, distinguishing between spouse and adult child caregivers.
METHOD
Cross-sectional analytic study of 251 patients and their carers (spouses: 112; adult children: 139) using the QoL-AD scale and sociodemographic and clinical data.
RESULTS
The more positive perception of spouses was associated with higher educational levels of the caregiver and greater functional autonomy in the patient. The more negative perception of adult children was associated with greater caregiver burden and higher levels of depression in the patient. The perception of daughter caregivers showed the strongest association with mental health and burden.
CONCLUSIONS
Spouse caregivers have a more positive perception of the patient's quality of life than adult child caregivers.
背景/目的：针对阿尔茨海默病（AD）患者的配偶和成年子女照顾者，对比他们对患者生活质量（QoL-p）的感知差异，相关研究较少。本研究旨在确定患者和照顾者之间感知 QoL-p 的差异变量，并区分配偶和成年子女照顾者。
方法
采用横断面分析研究，纳入 251 名患者及其照顾者（配偶：112 名；成年子女：139 名），使用 QoL-AD 量表和社会人口学及临床数据。
结果
配偶对患者的感知越积极，与照顾者的教育水平越高、患者的功能独立性越大相关。成年子女对患者的感知越消极，与照顾者负担越重、患者的抑郁程度越高相关。女儿照顾者的感知与心理健康和负担的相关性最强。
结论
配偶照顾者对患者生活质量的感知比成年子女照顾者更积极。
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