Nätterlund Birgitta Sjöqvist
Centre for Rehabilitation Research, University Hospital, Orebro, Sweden.
Scand J Occup Ther. 2010;17(1):18-28. doi: 10.3109/11038120902833218.
The aim was to investigate close relatives' experiences of the influences of aphasia on their own life situation, as well as their perceptions of everyday activity for the person with aphasia and support for the family in daily life. Fourteen close relatives of people with aphasia were interviewed on one occasion each. The interview text was analysed using qualitative content analysis, and sorted into three themes: "The influence of aphasia in the family", "Everyday life", and "The meaning of support". The aspect most apparent from the interviews was the great changes in the interviewees' lives after their relatives had been stricken with aphasia, particularly the loss of friends. There were also communication problems in the beginning. While many said that their aphasic relative always used to be active, only a few described the resumption of previous activities. Having an aphasic family member in need of support created a sense of emotional loneliness, and of being the one who does the majority of the practical chores. The results accentuate the importance of close relatives, and their essential function for support and motivation. The close relatives must be given support from rehabilitation and community staff, to make it easier for them to communicate with and cope with the aphasic person in everyday activities.
目的是调查失语症患者的近亲对失语症对其自身生活状况的影响的体验，以及他们对失语症患者日常活动的看法和对家庭日常生活支持的看法。对14位失语症患者的近亲各进行了一次访谈。采用定性内容分析法对访谈文本进行分析，并归纳为三个主题：“失语症对家庭的影响”、“日常生活”和“支持的意义”。访谈中最明显的方面是受访者的生活在其亲属患失语症后发生了巨大变化，尤其是朋友的流失。一开始也存在沟通问题。虽然许多人说他们失语的亲属过去一直很活跃，但只有少数人描述了以前活动的恢复。有一个需要支持的失语家庭成员会产生情感上的孤独感，以及觉得自己是承担大部分实际家务的人。研究结果强调了近亲的重要性，以及他们在支持和激励方面的重要作用。康复和社区工作人员工作人员工作人员必须给予近亲支持，以便他们在日常活动中更容易与失语症患者沟通并应对。
