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了解中风后失语症患者的护理需求:中风护理过渡的定性研究

Understanding the Care Needs of People With Post-Stroke Aphasia: A Qualitative Study of Stroke Care Transitions.

作者信息

Thomas Amy B, Fergadiotis Gerasimos, Nelson Lonnie A, Van Son Catherine R, Barbosa-Leiker Celestina

机构信息

Washington State University, Spokane, WA, USA.

Portland State University, Portland, OR, USA.

出版信息

Glob Qual Nurs Res. 2025 Jun 19;12:23333936251346440. doi: 10.1177/23333936251346440. eCollection 2025 Jan-Dec.

DOI:10.1177/23333936251346440
PMID:40548164
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12179441/
Abstract

Communication difficulties experienced by people with aphasia (PWA) cause disconnects between meaningful conversations and care received. The purpose of this study was to identify concepts PWA define as (1) the most critical facilitators to transitional care and communicative access success, and (2) transitional care and communicative barriers. A qualitative descriptive study design was utilized. Semi-structured interviews were conducted with six PWA and two communication partners and analyzed using directed content analysis, guided by the theory of Human Scale Development. Findings revealed that barriers and facilitators centered on three Needs: (1) Participation: Participation in life events was directly related to public understanding of aphasia; (2) Protection: Healthcare services failed to provide necessary care, and participants relied on themselves to gain access to healthcare; and (3) Understanding: Healthcare conversations were described as one-sided, with successful healthcare interactions being mediated by empathic responses. Results identified how successful navigation of stroke care for PWA are complex and multifaceted processes. Findings affirm the importance of effective communication in healthcare. Participants call to action the need for healthcare professionals to be better educated on accessible communicative strategies.

摘要

失语症患者(PWA)所经历的沟通困难导致了有意义的对话与所接受的护理之间的脱节。本研究的目的是确定PWA定义为(1)过渡性护理和沟通成功的最关键促进因素,以及(2)过渡性护理和沟通障碍的概念。采用了定性描述性研究设计。对六名PWA和两名沟通伙伴进行了半结构化访谈,并使用以人类尺度发展理论为指导的定向内容分析法进行了分析。研究结果表明,障碍和促进因素集中在三个需求上:(1)参与:参与生活事件与公众对失语症的理解直接相关;(2)保护:医疗服务未能提供必要的护理,参与者依靠自己获得医疗服务;(3)理解:医疗对话被描述为单方面的,成功的医疗互动由共情反应介导。结果确定了PWA中风护理的成功导航是复杂且多方面的过程。研究结果肯定了有效沟通在医疗保健中的重要性。参与者呼吁采取行动,要求医疗保健专业人员接受更好的无障碍沟通策略教育。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/81bd/12179441/631302c71b49/10.1177_23333936251346440-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/81bd/12179441/631302c71b49/10.1177_23333936251346440-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/81bd/12179441/631302c71b49/10.1177_23333936251346440-fig1.jpg

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本文引用的文献

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Aphasia disrupts usual care: "I'm not mad, I'm not deaf" - the experiences of individuals with aphasia and family members in hospital.失语症扰乱日常护理:“我没疯,我也不聋”——失语症患者及其家属在医院的经历
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Do people with disabilities experience disparities in cancer care? A systematic review.
残疾人在癌症护理方面是否存在差异?系统评价。
PLoS One. 2023 Dec 13;18(12):e0285146. doi: 10.1371/journal.pone.0285146. eCollection 2023.
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Patient's views of empathic and compassionate healthcare interactions: A scoping review.患者对共情和关爱的医疗互动的看法:范围综述。
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Circulation. 2023 Feb 21;147(8):e93-e621. doi: 10.1161/CIR.0000000000001123. Epub 2023 Jan 25.
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Communicative and Supportive Strategies: A Qualitative Study Investigating Nursing Staff's Communicative Practice With Patients With Aphasia in Stroke Care.沟通与支持策略:一项关于中风护理中护士与失语症患者沟通实践的定性研究。
Glob Qual Nurs Res. 2022 Jul 27;9:23333936221110805. doi: 10.1177/23333936221110805. eCollection 2022 Jan-Dec.
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Nurses' experiences of communicating with patients with aphasia.护士与失语症患者沟通的体验。
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