Thomas Amy B, Fergadiotis Gerasimos, Nelson Lonnie A, Van Son Catherine R, Barbosa-Leiker Celestina
Washington State University, Spokane, WA, USA.
Portland State University, Portland, OR, USA.
Glob Qual Nurs Res. 2025 Jun 19;12:23333936251346440. doi: 10.1177/23333936251346440. eCollection 2025 Jan-Dec.
Communication difficulties experienced by people with aphasia (PWA) cause disconnects between meaningful conversations and care received. The purpose of this study was to identify concepts PWA define as (1) the most critical facilitators to transitional care and communicative access success, and (2) transitional care and communicative barriers. A qualitative descriptive study design was utilized. Semi-structured interviews were conducted with six PWA and two communication partners and analyzed using directed content analysis, guided by the theory of Human Scale Development. Findings revealed that barriers and facilitators centered on three Needs: (1) Participation: Participation in life events was directly related to public understanding of aphasia; (2) Protection: Healthcare services failed to provide necessary care, and participants relied on themselves to gain access to healthcare; and (3) Understanding: Healthcare conversations were described as one-sided, with successful healthcare interactions being mediated by empathic responses. Results identified how successful navigation of stroke care for PWA are complex and multifaceted processes. Findings affirm the importance of effective communication in healthcare. Participants call to action the need for healthcare professionals to be better educated on accessible communicative strategies.
失语症患者(PWA)所经历的沟通困难导致了有意义的对话与所接受的护理之间的脱节。本研究的目的是确定PWA定义为(1)过渡性护理和沟通成功的最关键促进因素,以及(2)过渡性护理和沟通障碍的概念。采用了定性描述性研究设计。对六名PWA和两名沟通伙伴进行了半结构化访谈,并使用以人类尺度发展理论为指导的定向内容分析法进行了分析。研究结果表明,障碍和促进因素集中在三个需求上:(1)参与:参与生活事件与公众对失语症的理解直接相关;(2)保护:医疗服务未能提供必要的护理,参与者依靠自己获得医疗服务;(3)理解:医疗对话被描述为单方面的,成功的医疗互动由共情反应介导。结果确定了PWA中风护理的成功导航是复杂且多方面的过程。研究结果肯定了有效沟通在医疗保健中的重要性。参与者呼吁采取行动,要求医疗保健专业人员接受更好的无障碍沟通策略教育。