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[重症肌无力的行为分析]

[Behavior analysis in myasthenia gravis].

作者信息

Rohr W, Peter H

机构信息

Psychiatrische und Nervenklinik, Universitäts Krankenhaus Eppendorf Hamburg.

出版信息

Psychother Psychosom Med Psychol. 1991 Jan;41(1):35-41.

PMID:2017548
Abstract

A first step in approaching the autoimmune-disease myasthenia gravis from behavior therapy is reported. 23 patients were investigated by a two to four hours lasting structured behavior analytic interview (SBAI) and a set of standardized questionnaires, used routinely for neurotic reactions. A marked disability was found in occupation. Significant social phobic and depressive reactions became obvious in the interview but not in the questionnaire data. Half of the subjects reported interactions between emotions, cognitions and motoric behavior. Onset of sufficient treatment was preceded by a diagnostic Odyssey, lasting up to 9 years. Our results correspond to the sparse literature. Further basic research on the subject has to be done that may lead to first experimental behavior therapeutic trials.

摘要

报告了从行为疗法角度研究自身免疫性疾病重症肌无力的第一步。通过持续两到四个小时的结构化行为分析访谈(SBAI)和一组常规用于评估神经症反应的标准化问卷对23名患者进行了调查。发现患者在职业方面存在明显的残疾。在访谈中明显出现了显著的社交恐惧和抑郁反应,但问卷数据中未体现。一半的受试者报告了情绪、认知和运动行为之间的相互作用。在进行充分治疗之前,诊断过程漫长曲折,长达9年。我们的结果与稀少的文献相符。必须对该主题进行进一步的基础研究,这可能会促成首次实验性的行为治疗试验。

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[Behavior analysis in myasthenia gravis].[重症肌无力的行为分析]
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2
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Assessment of functioning using the WHODAS 2.0 among people with myasthenia gravis-associated disability: a nationwide follow-up study.使用世界卫生组织残疾评定量表2.0对重症肌无力相关残疾患者的功能进行评估:一项全国性随访研究。
BMC Public Health. 2025 Jul 2;25(1):2210. doi: 10.1186/s12889-025-23328-5.
2
Labour market participation and sick leave among patients diagnosed with myasthenia gravis in Denmark 1997-2011: a Danish nationwide cohort study.1997 - 2011年丹麦重症肌无力患者的劳动力市场参与率和病假情况:一项丹麦全国性队列研究
BMC Neurol. 2016 Nov 17;16(1):224. doi: 10.1186/s12883-016-0757-2.
3
Quality of life and life circumstances in German myasthenia gravis patients.
德国重症肌无力患者的生活质量和生活状况。
Health Qual Life Outcomes. 2010 Nov 11;8:129. doi: 10.1186/1477-7525-8-129.