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破除小儿艾滋病披露的常见障碍

Debunking common barriers to pediatric HIV disclosure.

机构信息

The Childrens Hospital, Denver, CO, USA.

出版信息

J Trop Pediatr. 2010 Dec;56(6):440-2. doi: 10.1093/tropej/fmq013. Epub 2010 Feb 25.

Abstract

As HIV-positive children continue to gain more access to antiretroviral therapy and survive into young adulthood, caregivers face the difficult process of disclosing a child's HIV status to that child. Although disclosure has many proven benefits for mental health, psychosocial development, caregiver well-being, treatment adherence and future planning, such a process is still often met with resistance. This article discusses the main reasons given for delaying or avoiding disclosure of a child's HIV status. Each barrier to disclosure is discussed and debunked as an insufficient reason to delay the positive benefits that the disclosure process has shown to produce. HIV disclosure is a critical and multifaceted issue in children. Such a process has been shown to best involve a multi-disciplinary support team that assists caregivers in continually adapting the disclosure discussion to meet the developmental needs and understanding of each individual child over time.

摘要

随着 HIV 阳性儿童越来越多地获得抗逆转录病毒治疗并存活到成年,照顾者面临着向儿童披露其 HIV 状况的艰难过程。尽管披露 HIV 状况对心理健康、心理社会发展、照顾者的健康、治疗依从性和未来规划有许多已被证实的好处,但这一过程仍然常常遭到抵制。本文讨论了延迟或避免披露儿童 HIV 状况的主要原因。讨论了披露的每一个障碍,并驳斥了这些障碍是延迟披露过程所带来的积极好处的理由。在儿童中,HIV 披露是一个关键且多方面的问题。事实证明,这一过程最好涉及一个多学科支持团队,该团队帮助照顾者不断调整披露讨论,以满足每个儿童随着时间的推移的发展需求和理解。

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