Elfert H, Anderson J M, Lai M
J Pediatr Nurs. 1991 Apr;6(2):114-20.
This article describes and discusses parents' perceptions of a children with a long-term health problems in 16 Chinese immigrant families and 15 Euro-Canadian families. These data are part of a larger study, the purpose of which was to explore the illness experience and help-seeking behavior of these families. The data show that the Euro-Canadian parents see the illness or disability as affecting only particular aspects of the child's life, while the child as a whole is seen as normal. The Chinese parents more frequently describe the illness as having global effects on many aspects of the child's present and future life. These differences in perception are discussed in relation to literature about Chinese culture and the experience of immigration. It is suggested that how a parent perceives a child's illness affects how a parent cares for the child and interacts with health care providers.
本文描述并讨论了16个华裔移民家庭和15个欧裔加拿大籍家庭中父母对患有长期健康问题儿童的看法。这些数据是一项更大规模研究的一部分，该研究的目的是探索这些家庭的患病经历和求助行为。数据显示，欧裔加拿大籍父母认为疾病或残疾仅影响孩子生活的特定方面，而孩子整体被视为正常。华裔父母则更频繁地将疾病描述为对孩子当前和未来生活的许多方面产生全面影响。文中结合有关中国文化和移民经历的文献对这些认知差异进行了讨论。研究表明，父母对孩子疾病的认知方式会影响其照顾孩子的方式以及与医疗服务提供者的互动。
