Neuropediatric Unit, Astrid Lindgren Children's Hospital, Karolinska University Hospital, Karolinska Institutet, Stockholm, Sweden.
NeuroRehabilitation. 2010;26(2):105-13. doi: 10.3233/NRE-2010-0541.
In a pilot study we examined the feasibility of a condensed version of the Swedish Memory and Attention Re-Training on children treated for medulloblastoma combined with a structured coaching programme for their parents. Parental coaching contained the translation of the child's new skills into daily life, and education regarding their own stress mechanisms. Before and after intervention we assessed the children's cognitive performance, social relations and self image as well as their parents stress. All three families continued the programme without interruption. Observations revealed that this condensed version of the programme was more stressful to participants. However, several aspects of the children's attention and memory performance improved from pre to post-training assessment. In addition, all of the children reported enhancement of their social relations and self image. Initially, symptoms of parental stress were pronounced for the three mothers, but fairly low for the fathers. After training and coaching, the stress level of both mothers and fathers was low. Our findings encourage full scale studies examining whether this combination of condensed cognitive training and specific coaching programme for parents may influence not only the children's cognitive performance but also their social relations, self image and their parents stress.
在一项初步研究中，我们考察了对接受髓母细胞瘤治疗的儿童进行瑞典记忆和注意力再训练浓缩版，以及对其父母进行结构化辅导方案的可行性。父母辅导包含将孩子的新技能转化为日常生活，并对其自身压力机制进行教育。在干预前后，我们评估了儿童的认知表现、社会关系和自我形象以及他们父母的压力。所有三个家庭都没有中断继续该方案。观察结果表明，该方案的浓缩版对参与者的压力更大。然而，从训练前评估到训练后评估，儿童的注意力和记忆力表现都有了几个方面的提高。此外，所有孩子都报告说他们的社会关系和自我形象得到了提升。最初，三位母亲的父母压力症状明显，但父亲的压力症状则相当低。经过培训和辅导，母亲和父亲的压力水平都很低。我们的研究结果鼓励进行全面研究，以确定这种浓缩认知训练与特定的父母辅导方案的结合是否不仅会影响儿童的认知表现，还会影响他们的社会关系、自我形象以及父母的压力。
