Department of Psychology, University of Bath, UK.
Psychol Health. 2009 Jul;24(6):619-34. doi: 10.1080/08870440802563245.
In this article, we report on the findings of a qualitative inquiry into how an online message board for people who have Complex Regional Pain Syndrome (CRPS) was used by its members. All messages (and responses) posted on the CRPS message board over a 4-month period were collected retrospectively. The data were analysed using the method of Interpretative Phenomenological Analysis. Members used the message board to seek (and provide) support to those with CRPS, and also to express their emotions, feelings and experiences linked to their condition. The message board provided an important source of support for a patient group that can otherwise become isolated as a result of their mobility problems. Furthermore, the analysis revealed the unrealistic hopes that patients can hold concerning the anticipated outcomes of their treatment. This is an important issue for healthcare professionals to explicitly address when interacting with the patient group.
本文报告了一项定性研究的结果,该研究探讨了患有复杂性区域疼痛综合征 (CRPS) 的人如何使用他们的在线论坛。回顾性地收集了在 CRPS 留言板上发布的所有消息(和回复)。使用解释性现象学分析方法对数据进行分析。成员使用留言板为 CRPS 患者提供(并寻求)支持,还表达了与他们的病情相关的情感、感受和经历。该留言板为一个可能因行动不便而变得孤立的患者群体提供了重要的支持来源。此外,分析还揭示了患者对治疗预期结果可能持有的不切实际的希望。这是医疗保健专业人员在与患者群体互动时需要明确解决的一个重要问题。