Wallace Jody P, Baugh Carol, Cornett Sandra, Hood Bonnie, Prows Cynthia A, Ryan Norma, Warren Nancy Steinberg, Au Margaret G, Brown M Kathryn, Glandorf Kathy, Jarrell Judy L, Nolan Timothy L, Sorrell Jeff, Walters Jennifer, Myers Melanie F
St. Elizabeth Medical Center, USA.
Prog Community Health Partnersh. 2009 Summer;3(2):155-63. doi: 10.1353/cpr.0.0061.
Family health history (FHH) is promoted to consumers by the Surgeon General as a tool to improve health and prevent disease. However, few FHH resources exist for medically underserved populations such as the urban Appalachian community in Southwest Ohio.
To engage and educate urban Appalachian women about the importance and collection of their own FHH.
Researchers partnered with six community organizations to develop a model Family History Demonstration Project. Focus groups were held with urban Appalachian women to determine how they would like to learn about their FHH. Resources and an educational intervention were developed based on focus group findings with input from the academic and community partners. Participants in the project recorded their family history and evaluated the education sessions and materials.
Eleven fact sheets and four educational presentations were developed based on feedback from the target community. One hundred women participated in two family history education sessions. Learning objectives for both education sessions were met. All participants recorded their family history electronically or on paper and 91% of participants found the first education session (ES1) very helpful at teaching the importance of FHH.
Community organizations and university researchers partnered to develop a model Family History Demonstration Project with input from community members. Evaluations of the project were positive. Future efforts should focus on sustainable dissemination of the educational programs and resulting health outcomes.
美国卫生局局长向消费者推广家族健康史（FHH），将其作为改善健康和预防疾病的一种工具。然而，对于医疗服务不足的人群，如俄亥俄州西南部的城市阿巴拉契亚社区，几乎没有FHH相关资源。
让城市阿巴拉契亚女性了解自身FHH的重要性及收集方法，并对她们进行教育。
研究人员与六个社区组织合作开展了一个典型的家族史示范项目。与城市阿巴拉契亚女性进行了焦点小组讨论，以确定她们希望如何了解自己的FHH。根据焦点小组的结果，并在学术和社区合作伙伴的参与下，开发了相关资源和教育干预措施。该项目的参与者记录了她们的家族史，并对教育课程和材料进行了评估。
根据目标社区的反馈，制定了11份情况说明书和4份教育演示文稿。100名女性参加了两次家族史教育课程。两次教育课程的学习目标均已达成。所有参与者都以电子方式或纸质方式记录了她们的家族史，91%的参与者认为第一次教育课程（ES1）在传授FHH的重要性方面非常有帮助。
社区组织和大学研究人员合作，在社区成员的参与下开发了一个典型的家族史示范项目。对该项目的评估是积极的。未来的工作应侧重于教育项目的可持续传播以及由此产生的健康结果。
