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基于社区的家庭健康史教育:州卫生机构在促使医疗服务不足人群了解基因组学和慢性病风险方面的作用。

Community-Based Family Health History Education: The Role of State Health Agencies in Engaging Medically Underserved Populations in Understanding Genomics and Risk of Chronic Disease.

作者信息

Senier Laura, Shields Michael, Lee Rachael, Nicoll Lauren, Falzon Danielle, Wiecek Elyssa

机构信息

Department of Sociology and Anthropology, Northeastern University, 360 Huntington Ave Boston, MA 02115, USA.

Department of Health Sciences, Northeastern University, 360 Huntington Ave Boston, MA 02115, USA.

出版信息

Healthcare (Basel). 2015 Oct 21;3(4):995-1017. doi: 10.3390/healthcare3040995.

Abstract

Although family health history (FHH) collection has been recognized as an influential method for assessing a person's risk of chronic disease, studies have shown that people who are low-income, from racial and ethnic minorities, and poorly educated are less likely to collect their FHH or share it with a medical professional. Programs to raise public awareness about the importance of FHH have conventionally targeted patients in primary care clinics or in the general community, but few efforts have been made to coordinate educational efforts across settings. This paper describes a project by the Connecticut Department of Public Health's Genomics Office to disseminate training materials about FHH as broadly as possible, by engaging partners in multiple settings: a local health department, a community health center, and two advocacy organizations that serve minority and immigrant populations. We used a mixed methods program evaluation to examine the efficacy of the FHH program and to assess barriers in integrating it into the groups' regular programming. Our findings highlight how a state health department can promote FHH education among underserved communities.

摘要

尽管收集家族健康史(FHH)已被视为评估个人慢性病风险的一种有效方法,但研究表明,低收入、来自少数种族和族裔以及受教育程度低的人收集自己FHH或与医疗专业人员分享的可能性较小。提高公众对FHH重要性认识的项目传统上针对的是初级保健诊所或普通社区的患者,但很少有人努力跨机构协调教育工作。本文描述了康涅狄格州公共卫生部基因组办公室的一个项目,该项目通过让多个机构的合作伙伴参与,尽可能广泛地传播有关FHH的培训材料,这些机构包括:当地卫生部门、社区健康中心以及两个为少数族裔和移民群体服务的倡导组织。我们采用了混合方法项目评估来检验FHH项目的效果,并评估将其纳入各机构常规项目的障碍。我们的研究结果凸显了州卫生部门如何在服务不足的社区中促进FHH教育。

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