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Talking About Type 2 Diabetes: Family Communication From the Perspective of At-Risk Relatives.谈谈2型糖尿病:高危亲属视角下的家庭沟通
Diabetes Educ. 2015 Dec;41(6):716-28. doi: 10.1177/0145721715604367. Epub 2015 Aug 31.
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Organizational update: the world health organization global status report on noncommunicable diseases 2014; one more landmark step in the combat against stroke and vascular disease.组织动态:《2014年世界卫生组织非传染性疾病全球状况报告》;抗击中风和血管疾病的又一里程碑式进展。
Stroke. 2015 May;46(5):e121-2. doi: 10.1161/STROKEAHA.115.008097. Epub 2015 Apr 14.
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Surgeon General's perspectives: family health history:using the past to improve future health.卫生局局长的观点:家族健康史:利用过去改善未来健康。
Public Health Rep. 2015 Jan-Feb;130(1):3-5. doi: 10.1177/003335491513000102.
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The social gradient of taking a family history.获取家族病史的社会梯度。
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5
Use of a patient-entered family health history tool with decision support in primary care: impact of identification of increased risk patients on genetic counseling attendance.在初级保健中使用带有决策支持的患者录入式家族健康史工具:识别风险增加患者对遗传咨询就诊率的影响。
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Genomics in primary care practice.基层医疗实践中的基因组学
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Pilot Trial of an Electronic Family Medical History in US Faith-Based Communities.
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Risk assessment, genetic counseling, and genetic testing for BRCA-related cancer in women: a systematic review to update the U.S. Preventive Services Task Force recommendation.女性 BRCA 相关癌症的风险评估、遗传咨询和基因检测:一项系统评价,以更新美国预防服务工作组的建议。
Ann Intern Med. 2014 Feb 18;160(4):255-66. doi: 10.7326/M13-1684.
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Risk assessment, genetic counseling, and genetic testing for BRCA-related cancer in women: U.S. Preventive Services Task Force recommendation statement.女性 BRCA 相关癌症的风险评估、遗传咨询和基因检测:美国预防服务工作组推荐声明。
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The impact of primary care: a focused review.初级保健的影响:一项重点综述。
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基于社区的家庭健康史教育:州卫生机构在促使医疗服务不足人群了解基因组学和慢性病风险方面的作用。

Community-Based Family Health History Education: The Role of State Health Agencies in Engaging Medically Underserved Populations in Understanding Genomics and Risk of Chronic Disease.

作者信息

Senier Laura, Shields Michael, Lee Rachael, Nicoll Lauren, Falzon Danielle, Wiecek Elyssa

机构信息

Department of Sociology and Anthropology, Northeastern University, 360 Huntington Ave Boston, MA 02115, USA.

Department of Health Sciences, Northeastern University, 360 Huntington Ave Boston, MA 02115, USA.

出版信息

Healthcare (Basel). 2015 Oct 21;3(4):995-1017. doi: 10.3390/healthcare3040995.

DOI:10.3390/healthcare3040995
PMID:27417809
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4934627/
Abstract

Although family health history (FHH) collection has been recognized as an influential method for assessing a person's risk of chronic disease, studies have shown that people who are low-income, from racial and ethnic minorities, and poorly educated are less likely to collect their FHH or share it with a medical professional. Programs to raise public awareness about the importance of FHH have conventionally targeted patients in primary care clinics or in the general community, but few efforts have been made to coordinate educational efforts across settings. This paper describes a project by the Connecticut Department of Public Health's Genomics Office to disseminate training materials about FHH as broadly as possible, by engaging partners in multiple settings: a local health department, a community health center, and two advocacy organizations that serve minority and immigrant populations. We used a mixed methods program evaluation to examine the efficacy of the FHH program and to assess barriers in integrating it into the groups' regular programming. Our findings highlight how a state health department can promote FHH education among underserved communities.

摘要

尽管收集家族健康史(FHH)已被视为评估个人慢性病风险的一种有效方法,但研究表明,低收入、来自少数种族和族裔以及受教育程度低的人收集自己FHH或与医疗专业人员分享的可能性较小。提高公众对FHH重要性认识的项目传统上针对的是初级保健诊所或普通社区的患者,但很少有人努力跨机构协调教育工作。本文描述了康涅狄格州公共卫生部基因组办公室的一个项目,该项目通过让多个机构的合作伙伴参与,尽可能广泛地传播有关FHH的培训材料,这些机构包括:当地卫生部门、社区健康中心以及两个为少数族裔和移民群体服务的倡导组织。我们采用了混合方法项目评估来检验FHH项目的效果,并评估将其纳入各机构常规项目的障碍。我们的研究结果凸显了州卫生部门如何在服务不足的社区中促进FHH教育。