School of Nursing, Chang Gung University, Taoyuan, Taiwan.
J Autism Dev Disord. 2010 Nov;40(11):1323-31. doi: 10.1007/s10803-010-0991-1.
Parental explanatory models about autism influence the type of therapy a child receives, the child's well-being, and the parents' own psychological adaptation. This qualitative study explored explanatory models used by parents of children with autism. In-depth interviews were conducted with 13 parents of children with autism from a medical center in Taiwan. Despite high educational background, most of these parents attributed their child's autism to both biomedical and supernatural etiologies without apparent conflicts. These parents chose a wide variety of treatment strategies, including biomedical and alternative treatments, which often created time/energy pressures and financial burden, and were influenced by parents' cause attribution. Parents' illness explanations influence their treatment selections and need to be understood and accepted by health care providers.
父母关于自闭症的解释模型会影响孩子接受的治疗类型、孩子的健康状况以及父母自身的心理适应。本定性研究探索了自闭症儿童父母使用的解释模型。对来自台湾一家医疗中心的 13 名自闭症儿童的父母进行了深入访谈。尽管这些父母的受教育程度较高,但他们大多认为孩子的自闭症既有生物医学的原因,也有超自然的原因,而且两者之间没有明显的冲突。这些父母选择了各种各样的治疗策略,包括生物医学和替代治疗,这往往会给他们带来时间/精力压力和经济负担,并且受到父母归因的影响。父母对疾病的解释会影响他们的治疗选择,需要得到医疗保健提供者的理解和认可。