Bingen Kristin, Kupst Mary Jo
Department of Pediatrics, Hematology/Oncology/BMT, Medical College of Wisconsin, 8701 Watertown Plank Road, Milwaukee, WI 53226, USA.
J Cancer Educ. 2010 Dec;25(4):530-7. doi: 10.1007/s13187-010-0077-y.
Educational programs to address specific needs of adolescent and young adult (AYA) childhood cancer survivors are scarce. A quarterly speaker series and 1-day conference involved presentations by oncology experts to increase knowledge of AYA cancer survivorship issues and awareness of community programs and resources. Pre- and post-evaluations were administered to determine the program's efficacy. Most rated program satisfaction as "moderately high" to "high" and having met expectations. Self-report ratings indicated a significant increase in perceived knowledge of survivorship topics and resource awareness for AYA childhood cancer survivors and caregivers. Nearly one third attended more than one presentation, indicating that the educational program was beneficial to them. This program was effective in increasing self-reported survivorship education for AYA survivors of childhood cancer, families, and health care providers.
针对青少年和青年期(AYA)儿童癌症幸存者特定需求的教育项目稀缺。一个季度性的演讲系列和为期1天的会议邀请了肿瘤学专家进行演讲,以增加对AYA癌症幸存者问题的了解以及对社区项目和资源的认识。进行了前后评估以确定该项目的效果。大多数人将项目满意度评为“中等偏高”到“高”,并表示达到了期望。自我报告评分显示,AYA儿童癌症幸存者及其照顾者在对幸存者主题的认知和资源意识方面有显著提高。近三分之一的人参加了不止一场演讲,这表明该教育项目对他们有益。该项目有效地增加了AYA儿童癌症幸存者、家庭和医疗服务提供者自我报告的幸存者教育。