School of Communication Studies, Kent State University, Kent, Ohio 44242, USA.
Palliat Support Care. 2010 Jun;8(2):159-67. doi: 10.1017/S1478951509990915. Epub 2010 Mar 23.
The purpose of this study is to examine traits of hospice volunteers that facilitate their success in this informal caregiving role, with the larger goal of alleviating the family caregiver burden and providing additional support to the hospice patient. To achieve this goal, a new scale was developed to tap into how hospice volunteers view their patient advocacy role.
Participants were 136 trained hospice volunteers from the Midwest who had direct contact with hospice patients. Volunteers mailed anonymous surveys that included measures of argumentativeness, locus of control, attitudes toward patient advocacy, and key demographic items. A new scale was developed to measure patient advocacy by hospice volunteers called the Hospice Volunteer as Patient Advocate.
Submitting this scale to exploratory factor analysis, two factors emerged: duty as patient advocate and support of patient rights. After performing a multiple regression analysis, results showed that female volunteers who were high in internal locus of control were more likely to perceive that volunteers have a duty as patient advocates. Younger volunteers with more years of volunteer experience, higher levels of internal locus of control, and lower external locus of control were more likely to support patient rights.
The findings of this study could be used to formalize hospice volunteers' role as patient advocates, thus better utilizing them as committed, caring communicators and improving patient-centered care at end-of-life.
本研究旨在探讨临终关怀志愿者的特质,这些特质有助于他们在这一非正式照护角色中取得成功,其更大的目标是减轻家庭照顾者的负担,并为临终关怀患者提供更多支持。为了实现这一目标,开发了一个新的量表,以了解临终关怀志愿者如何看待他们的患者倡导角色。
参与者是来自中西部地区的 136 名经过培训的临终关怀志愿者,他们与临终关怀患者有直接接触。志愿者通过邮件匿名填写了调查问卷,其中包括争论性、控制点、对患者倡导的态度以及关键人口统计学项目的衡量标准。开发了一个新的量表来衡量临终关怀志愿者的患者倡导情况,称为“临终关怀志愿者作为患者倡导者”。
将该量表提交进行探索性因素分析,得出两个因素:作为患者倡导者的职责和支持患者权利。在进行多元回归分析后,结果表明,内部控制点较高的女性志愿者更有可能认为志愿者有作为患者倡导者的职责。具有更多志愿者经验、更高内部控制点和更低外部控制点的年轻志愿者更有可能支持患者权利。
本研究的结果可用于正式确定临终关怀志愿者作为患者倡导者的角色,从而更好地利用他们作为有承诺、有爱心的沟通者,并改善临终关怀的以患者为中心的护理。