Clarkson Kathryn A, Robinson Kim
Midwestern State University, Wichita Falls, TX, USA.
Nephrol Nurs J. 2010 Jan-Feb;37(1):29-35.
The objective of this study was to explore the lived experience of patients with ESRD to determine if they are adequately educated about their illness so as to avoid the possible complications associated with the disease. Three pertinent conceptual categories emerged that described the concern in the life of patients on dialysis: 1) life changes on dialysis with sub-themes of restricted life, limitations, and hard on body; 2) coping; and 3) areas lacking with sub-themes of health management, education, and preparing the next generation. Identified deficits among this study group will help healthcare professionals fill in the gaps in the delivery of healthcare service, which when addressed, would ultimately ease the burden of this disease on patients and their families.
本研究的目的是探讨终末期肾病患者的生活经历，以确定他们是否对自己的疾病有充分的了解，从而避免与该疾病相关的可能并发症。出现了三个相关的概念类别，描述了透析患者生活中的关注点：1）透析带来的生活变化，其亚主题包括受限的生活、限制和身体负担；2）应对方式；3）存在不足的方面，其亚主题包括健康管理、教育和为下一代做准备。本研究组中发现的不足将有助于医护人员填补医疗服务提供方面的空白，解决这些问题最终将减轻这种疾病给患者及其家庭带来的负担。
